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@kimiblanc 

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kimiblanc

Weaning off gilenya

Hi, It's done, I'm currently weaning off gilenya! (Moved on to brabio and on week 2, appears a bit illogical to drop in efficacy of treatment but it's a long story). I am however getting increasingly nervous and fearful about the rebound relapse risk although I know whatever happens is completely out of my control. Would people be happy to share their experiences with me so I can manage my own expectations? Would really appreciate it! Feel free to private message if you feel more comfortable. Kim
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@Stumbler
@Stumbler
 

@kimiblanc , I'm aware that there is a risk of rebound when stopping Gilenya. But, this is just a risk and not a definite. Isn't the Brabio to mitigate that risk?

@Judie
@Judie
 

Hi Kim, I am also off Gelenya because as my neurologist said I am breaking through Gelenya. My arms and hands have started to show MS activity, numbness and tingling. I recently experienced a two week exacerbation. Tomorrow I am starting Ocrevus. Ocrevus is transfused every 6 months after the initial two doses. No more injections or pills! Although there is a list of potential side effects it is my responsibility to contact my doctor if I experience any side effect. In keeping with my positive attitude I don't expect to have any side effect and that the medication is effective for me. I hope your next treatment will work well for you Kim.