Steroids
Hi
I was given a steroid infusion last week because I lost my vision. It was not at my usual or own neurologist. My Ms nurse called yesterday and said I would need to self isolate. She also said that although i had new lesions they were are not active so I shouldn't have had them. Can anyone give advice? Thanks
Julie
I had blurry vision in my left eye over a year ago and called my neuro who ordered an MRI but they found no active lesions so he wouldn't prescribe steroids. Usually my attacks would impact my gait more than my vision so I wasn't surprised. Then it seemed to worsen more and I got another MRI and this time they saw activity on my retinal wall so he did prescribe steroids (1 G per day through infusion pump for 3 days) but that didn't fix it immediately as steroids normally do the previous times I've had them. Over about a month my vision returned to normal. But make sure they are looking at all the vision affecting things- optic nerve, thinning or thickening of the retinal wall, etc. as well as lesions on the brain. My most troubling lesions are on my spine but I think they affect my gait the most- There is a bit online but less than we would hope- Dr Boster has a bit like this one https://www.youtube.com/watch?v=tJvHbk9wsEI&t=2s
@julze22 , High Dosage Steroids are usually prescribed for a defined relapse which is adversely impacting one's quality of life. It's a strong treatment, so shouldn't be given lightly. Too many steroid treatments are bad for us. Relapses are diagnosed by discounting other causes for these present symptoms. It's not possible to determine whether lesions are active or not without an MRI scan WITH contrast There isn't really time to arrange this scan and get the results in time to take action. It just seems a strange sequence of events.