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@jessvf14 

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jessvf14

Spinal lesions vs disability

Hi everyone. I've been lucky so far in that my symptoms have only ever been sensory and I've only had sensory relapses. When I asked my neuro if he thinks I'm likely to stay as fortunate (I know it's impossible to predict case by case but was thinking about a rough comparison of the pattern of patients who have been in a similar position to myself) he said because I mainly have spinal involvement it's likely that I won't and am likely to develop weakness etc with further spinal activity. I then got annoyed that I'd asked the question but it made the decision to start DMD even easier to be honest. I just wondered, does anybody know if there actually is a correlation between lesion site and disability or is it literally pot luck?
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@Stumbler
@Stumbler
 

@jessvf14 , it's better to live for the present, without worrying too much about the future. By adopting a DMD, you are taking some control of your MS. So, live healthily, avoid stress and keep MS progression down to an absolute minimum. :wink:

@Sonia1984
@Sonia1984
 

I was just diagnosed last year but I believe I have been having ms relapses as early as 16. I have mainly had sensory issue as well and all my lesions are on my brain no spinal. Still fully mobile my main symptom being incredible fatigue. Also one giant lesion on my brainstem that almost took me out last year but I'm still here which I am incredibly greatful for. Don't stress yourself too much with the what if's because they are what if's. Life is already stressful enough why aggravate it? Everyone's Ms is so different so even speaking to two people with the exact same disease can have two different outcomes. Your progression could be very slow and take many years no one knows. I am kind of glad I didn't find out I had it until last year but at the same time wish I had known sooner so I could be put on a DMD. Just know that your not alone in constantly wondering how your progression will go but refuse to allow the good days to pass without fully appreciating them. The one thing this disease has open my eyes to is to appreciate the people I have in my life and appreciate every day as it comes.