@ettelrahs

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ettelrahs

Numbness around my mid section

I've woke up today and I was putting on my pants and as the waistband was going over my upper thigh and stomach/hips, it felt a little weird. I have had a poke and prod and my whole around around my hips/lower back, upper thighs and lower stomach area and around and its all numb. No idea why, not experienced this before. Is this something I should notify and keep track of? I don't feel unwell of any sort, just having this symptom at the moment. Any advice would be appreciated. Thanks in advance.

Stumbler

@Stumbler

@ettelrahs , keep a note of it and if it remains as is for over 24 hours, let your MS Nurse know. 😉

ettelrahs

@ettelrahs

I thought that, thank you @stumbler - I'm currently at the walk in centre now. They always tell me to 'check your urine' so that's what i' m doing - my obs are fine also as far as I know so I will definitely keep check - thank god for weekend NHS x

Stumbler

@Stumbler

@ettelrahs , it is always worthwhile to discount a UTI. Although that could make old/existing symptoms flare up, but shouldn't cause new symptoms........... Thanks God for the NHS, period.

ettelrahs

@ettelrahs

Update. All my lower half has altered sensation. My feet feel super weird, they have been tingling all night and still are right now. When I touch my skin it does feel like my skin if that makes any sense at all? Horrible feeling.

ItsMewithMS

@ItsMewithMS

That sounds awful. I've never had the "MS Hug" in it's normal presentation but had it as an injection type reaction to taking Copaxone. Sounds like you are receiving treatment? sounds like you need it and maybe if it is severe enough they will consider Sol Medrol to shut it down after confirming active inflammation. That is what they would do with me in the states. I know you have different protocol over there. Besides Ocrevus as a DMT I have Gralise (a gabapentin slow release cousin) that I do feel helps as well as stretching, Mg making sure I stay hydrated, etc etc. I was having "meralgia paresthetica" for awhile and it was frustrating but not really painful. It has, thankfully, relented after several months. Sometimes it just does take time, and rest without stress, for our body to rebuild itself. Good luck-

Vixen

@Vixen

Hello @ettelrahs, I had what you describe EXACTLY before I was diagnosed. I later learnt it was an MS symptom. It wasn’t painful, just weird. The sensation disappeared after a few weeks but moved to the area above my knee which became a permanent fixture. It felt to me like the top skin layer was OK but the layer underneath was deadened and semi numb. Does that make sense?

ettelrahs

@ettelrahs

@itsmewithms I have more than likely shot myself in the foot here with not being on any DMT. The nurses haven't said much about my decision not to go forward with them. They seem to think I'm low risk. But I think I may start rethinking my outlook because of whats happening now. I've been feeling 100% with my health and mental state, no sickness or feeling tired. I've been managing well which makes me think why now? That time of year again I suppose D: going to make it known tomorrow when I get the chance, hate it when things kick off over the weekend. Thanks so much for your response! @vixen- Makes a lot of sense! I was in the shower last night and running my exfoliate over my legs, its was a really odd but unpleasant feeling. Especially when compared to running it over my arms or chest. There was definitely a significant difference in sensation. It's been more than 24hours now which is making me think, over think D: It sounds very similar for sure, I feel pressure but not any normal feeling when I run my hands over my legs, like I know i'm touching my leg but its not fully registering in my lower half.

ItsMewithMS

@ItsMewithMS

Yes - think long and hard about your decision. You may feel fine, for now, not being on a DMT and it is just a lot of bother but ask yourself if you want the condition to worsen and a lot of new symptoms to join on it. Watch the "progression" and "Leaky Pool" videos of Dr Boster to understand what I am saying. Also great ones on his channel and others of what DMTs and treatment paths are out there. Good stuff on diet and life style as well that all work together for an effective management path https://www.youtube.com/watch?v=fZPQ48N-nIs&t=321s That numbness stuff is what was going on for me this summer with the "meralgia paresthetica” it gradually faded away. Didn't really cause me any issues but annoying and I think my footdrop was more prevalent while I had it. I've switched up some things and it is better. I could basically stick a pin in myself (Neuro did) and not really feel it. I had EMG tests done that proved the nerves were there and working (hadn't been damaged by my hip replacement). I improved my diet, do more stretching in my PT hour each day, switched over to Ocrevus, take Gralise, etc. and gave it time, reduced stress (left toxic boss and work) and more sleep. That all plays in- Good luck!

ettelrahs

@ettelrahs

@itsmewithms thank you for your informational reply. I appreciate it so much. I have made the decision to go ahead with the DMT. Most definitely going to read up again on the different ones offered and go forward. Update ** I waited 2 hours for a doctors appointment, got up super early to secure one and I have been given 3 days worth of steroids for relapse. Not the best news but has really shaken things up for me in terms of decision making about my condition.

Stumbler

@Stumbler

@ettelrahs , was it a Doctor or Neurologist that prescribed the Steroids. It's just that Doctors (GPs) are unfamiliar with the dosage required to treat a relapse. It needs to be 500mg-1Gm. Anything less is a waste of time. https://www.mstrust.org.uk/a-z/steroids-methylprednisolone

ettelrahs

@ettelrahs

So my doctor rang the secretary of my neurologist and they put him through to her for advice on what action to take. First time I've seen my doctors get shit done. They suggested 500mg of that medication you just tagged in the link, once a day for the next 3 days. @stumbler

Stumbler

@Stumbler

@ettelrahs , that's what you want from your Doctor, i.e. seeking the right advice.

ettelrahs

@ettelrahs

@stumbler for sure, I've avoided the doctors for a while because I feel good, well I've felt good. So never needed it but they have definitely come through with the support today, I'm so appreciative.

ItsMewithMS

@ItsMewithMS

When I call in with a symptom that has lasted more then 24 hours and it affects my vision or my gait my neuro acts fast. I get pulled in for an MRI and if they find active inflammation he prescribes me an infusion of sol medrol, I've had 3 day and 5 day series of home infusions (they set the line and then I hook up a steroid ball to it once a day) then sometimes I've had the tail down packs at the end. That pops me out of an attack when there was active inflammation. This last fall I was having issues and was prescribed a 3 day course and the bounce back wasn't as fast as before. The issue of the week was blurry vision in my left eye. I also had numbness in my right thigh and gait issues a month before but there was no active inflammation at that time so I wasn't given steroids. I usually get action within a day from my Neuro when I call or drop a note into his portal I get a call back from his nurse assistant quickly. Sounds like they are responding with the appropriate urgency...that is good ;-)

HelenJR

@HelenJR

@ettelrahs your symptoms are exactly what I had when I was diagnosed! I didn't really realise anything was wrong until I shaved my legs in the shower and realised I couldn't feel the blade, or in fact the water on my body anywhere from the waist down. I held off on steroids for a while as it wasn't causing pain, but after a few weeks it was just plain irritating to be alternating between numb and tingling over half my body. Glad you're getting support now and hope it all goes back to normal soon. It took me a few months, and I still tingle when I'm stressed or tired, but apart from that, all good.