@Winchy2022 

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Winchy2022

Avonex and what to expect

Hi All , Just wondering if anyone on here is on Avonex. I have been on it for 8 weeks. Looking for your experiences of side effect and what to expect. Look forward to hearing back from any of you
@AndreaG

I started my MS journey on Avonex, after my weekly injection on a Thursday, my body would "dip" and I struggled, but that gave me the weekend to recuperate and I was OK until the following week, so would start the process again. I would take over the counter pain killers to help me through the Friday. No noticeable side effects but I don't like needles, even though the Avonex is in an epi pen, I would get quite stressed before injecting myself. I was on Avonex for three months, before being offered a place on a clinical trial. I'm now on Gilenya, which I find much easier to deal with as this is taken as a daily tablet. Both seemed to do the job as I haven't had a relapse in nearly 9 years.

@Clary

Hi @Winchy. I was on Avonex last spring. I managed about 10 weeks. I gave it up because I was feeling ill for days before and afterwards. I also suffered headaches, and I found the auto injection far too stressful (I couldn’t get them to work, nor could my other half)! I think Avonex has been shown to be very good over the long term (years) at reducing lesions and relapse rate. Unfortunately I couldn’t stick with the IM injection. It was too stressful. Although, in reality the injection didn’t hurt as much as I thought. It was the side affects that put me off. I am currently still waiting to start a new DMT. It will be nearly a year. Goodness knows what neurological damage may have occurred. I hope that my disease progression is slow 🤷‍♀️. Going for an MRI today 🥳. Good luck with Avonex. 😊