Supporting a friend with symptoms until diagnosis
A friend's clearly struggling with symptoms which range from tingling, numbness, heat patches to pain, cognitive impairment and fatigue, spasticity to trigeminal Neuralgia bladder and bowel issues recently too.
Athough she has had an MRI, which a muscosceletal doctor has said looks normal, she is still experiencing symptoms which look like MS.
This has been happening to her since January and I have seen 3 separate attacks of these flare ups happening, lasting for weeks the first time, nearly a month the second time, the third time seemed to be heat related and confused her as she had been running around like a headless chicken in the heatwave. She has never experienced tingling and numbness when she was hot before. She had a new patch of numbness on her inner thigh and the old patches flared up again.
The first flare up stared with a patch of numbness on her stomach, going temporarily blind in hot bath, then her hands started to slow right down to a halt so opening a juice bottle or using her phone was impossible, we used the voice to text function in this time. Hands where on and off numb and tingly and some patches on her arms tingling.
Her speech went and she had issues swallowing and choked a few times, even on air once, it was scary to see.
Drooling slightly from the side of her cheek for 2 days, then numbness on one side of the face, then a patch on her arm which started to go numb.
Took her to hospital and they gave CT scan thinking she had stroke as she also had one sided weakness and slurred speech. Her vision was also blurry in the first attack. Came back clear.
The next attacks or flare ups, it was a combination of some of these things resurfacing that had ailed her on attack no 1. And new symptoms of numb or heat patches tingling or numbness.
She has been struggling with mobility for years due to Parathesia and chronic pain in her lower back..
but I'm looking at that differently now.
I don't know much but I can see how hard it is she is trying to do things. It takes her 10 times longer than usual if she can manage at all.
She used to love the sun, now a little scared after her arm started tingling when the sunbeams where on her for arm for a while.
Washing up is becoming dangerous too ( I help when I can) , she needs help to wash up now and get things out the oven as her hands keep going numb and weak.
She loved regular hot baths now it feels horrid she says the heat is making various patches on her body tingle.
I don't know what to say to her that will help, and I don't want to minimise what she is going through, she seems defeated with all this interaction and appointments regards what's going on.
After these attacks the symptoms either fully or partially resolved. She doesn't seem the same though. Her walking is really bad like a drunkard at times.
My question is... What from a friend's point of view can I do or help with, or what is the most important thing someone suffering with this heavy weight of symptoms with no diagnosis?
Thank you
You're already doing the most important thing from a friend's point of view @Todayistheday and that is being there for her, caring and supporting her through this extremely difficult time. The MS helpline will help friends too and offer support for those going through a diagnosis. They'll be able to explore some possible options for you and your friend so you both feel more supported. https://www.mssociety.org.uk/care-and-support/ms-helpline
I really appreciate your response thank you. I will try the helplines. Kind wishes