@TD1989

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TD1989

Plegridy Posivites Please!

Hi all, I was recently advised to start treatment as I have developed new leisons in my spinal cord! I had the choice of 3, which all seem much the same, with similar results and side effects. I chose Plegridy due to it being allowed to be out of a fridge longer (I like to travel) and only 1 injection every 2 werks, I start in March. The problem is when I look online all I can find are negatives and bad reviews. Which understandably is making me a little nervous! Has anyone had any good experience with this treatment drug and can offer me some positives?! I hope so! Thank you.

g20-1

@g20-1

Hello Td1989, I've recently started plegridy too, so far had the flu like symptoms with the first injection, had no symptoms with the second injection .

StrictlySoca

@StrictlySoca

The reason there are more bad reviews than good is due the innate negativity bias of the human response however as plegridy is not a highly effective drug if I were you I would ask some hard questions of the neurologist who gave you 3 choices of similarly ineffective drugs. They might be behind the times.

TD1989

@TD1989

@g20-1 thank you, I hope you continue with no symptoms from here on in. @strictlysoca these are the only options that are available for the stage and type of MS I have at the moment. I have also done my own research. Thank you though.

StrictlySoca

@StrictlySoca

I see you are in the UK and doing your research. You are only now being offered treatment but the conclusion in 2015 was that early treatment is the best way forward. You have only been advised to start treatment as you have new lesions which is not following even old research. Maybe check out the Barts MS blog if you have not done so already for up to date thinking. I am sorry if I am coming across as a know it all but I feel quite passionately when MSers are being offered crap drugs and being offered them late. Wishing you well

paztaz

@paztaz

Hi, I m on my second injection also, just feel a bit achy but have wondered why I have only now after 12 years been offered this drug.I did have optic nueritus in june first time ,so mri scan must have shown something but im not getting told anything.

Stumbler

@Stumbler

@td1989 , Plegridy is a new formulation of one of the original CRAB (Copaxone, Rebif, Avonex, Betaferon) drugs introduced some 30 years ago. It is therefore one of the first line treatments prescribed by conservative Neuros. There are better, more effective treatments available, so why have these not been considered? You do need to do your own research so that you can be an active participant in any treatment discussions. You can then "fight your corner" for a treatment that you prefer and better fits your lifestyle.

TD1989

@TD1989

@paztaz I'm not sure, I'm only a just over a year after diagnosis. Hope the treatment helps you and you continue with minimal side effects. @strictlysoca thank you, I'll look at the blog. I don't feel I have been offered treatment late either, not long been diagnosed really and lucky that symptoms aren't too bad day to day. @stumbler thank you for your comments. At the moment, these seems to be the best options for me. I'm luckily that I have minimal symptoms, but due to the fact that more lesions have grown, the doctors have decided this is the best course as a preventative drug. I really just wanted to find out how people were managing on it, as online, as with most things, it's easier to find negatives than positives!

Stumbler

@Stumbler

@td1989 , "these seems to be the best options for me"! Is that your view or the Neuro's? The lesions growing is suggestive of your MS progressing, so if prevention is the aim, why not go for the most effective treatments, rather than the least? We need to take some control and be our own advocate to get the treatment we want. It's our body.