Tysabri infusion
I'm having my first tysabri infusion next week. I'm really anxious about it! Can anyone share their experiences?
We are a charity and rely on donations
Charity Number: 1117194 (England and Wales)
Registered Company: 06000961
Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom
London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom
©2024 Shift.ms
Last reply
Hey @Ms2021 - I was on Tysabri for a few years, when I started I was in a real bad way. Couldn’t walk far, very weak, MS relapses one after the other. Tysabri changed my life, I lived like there was nothing wrong with me. I could walk for miles and I was in such a good way. I know everyone responds differently, but I can’t recommend this treatment enough. I am JC+ so I had no choice but to come off it, which to this day I feel very frustrated about. But, for you, this could be the beginning of the rest of your life. If you respond to it even half of the way I did, enjoy it and make the most of it! For me, it was a miracle. Good luck xx
Hello @Ms2021 , I had been on tysabri for 10 years and thought it was great for me. I sadly had to come off it as I was JC positive and have started Ocrevus now which I hope will do as well for me as tysabri did. I had no side effects after each treatment of ty and enjoyed the 4 weekly meet up with my fellow mser's when I was getting it. Good luck with it but I'm sure you'll be fine :)