Diagnosis-primary progressive
I was diagnosed the other with primary progressive MS. I am 32 year old female and was wondering is having children an option anymore? It was one of my first questions as I really wanted children.
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I don’t have any kids, but what I’ve heard is that you get a break from MS during pregnancy. I’ve heard that women usually have a relapse as soon as they give birth so you have to be ready to start a medicine as soon as you give birth. I’ve also heard that breastfeeding is typically out of the picture because of having to go back to treatment right away. But I don’t know any of this firsthand.
There is no treatment for PPMS in many places but something is forthcoming. I think it's called Ocrevus or similar. You would need to check and if you go on treatment, @sherryak is probably right re breast feeding and pregnancy. If I was you, I would consider this: - Have you got a partner and/or wider family/friends who will be there for you and your children if push comes to shove? - How big would the financial impact be for your future family if you ended up unable to work? - Is there a history of autoimmune disorders in your family (MS isn't heritable but it seems a number of MSers come from families with autoimmune issues)? I.e. are you likely to pass on an autoimmune 'gift'? - Do you have any other health problems besides MS that make life harder? Given that my answers to the above were no/massive/yes/yes I felt it was better to give babies a rain check. That said, having kids was never a priority anyway. If I was you, I'd give myself a year or so to get to know your own journey with MS. And in parallel, if any of the above answers are dodgy you can see what you can do to improve them. Overall, there is no reason not to have kids because of MS. But all of us with MS sit on a bit of a time bomb which may never go off terribly badly (!!) but I think it is important to have safeguards in case they are needed. poppy