I think that’s probably a familiar scenario for most people. I think they do just leave us to it “unless” they’re needed for something, as there’s not much they “can” do. My MS Nurse told me that they’re already understaffed in how many people she is the MS Nurse for, there should be at least 3 people in her department but it’s just her. She has to prioritise MS patients who are much worse off than me. But I have pestered to try and get support, for example supplementing vitamins, I had no idea if they were working and I should have been getting my bloods taken every quarter but it hadn’t beem arranged… so when I chased up it got sorted. But no, when it comes to weird symptoms or potential flare ups etc there’s not really anyone to talk to or get checked out in the MS field. Just go to the GP (which is impossible) and they either diagnose it wrong if it’s an MS thing, or they pass you off if it’s MS related. You should be getting an annual MRI and review with a neurologist though? To check for further lesions?

I had one vout 2 yrs ago and still not heatd my results. Cant get thro to her