whats it like on Tysabri?
Been suggested i start Tysabri however slightly hesitant due to the risk of PML.
How have people found Tysabri does the reward outweigh the risk?
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Hi, I've just had my 2nd Tysabri infusion and so far it's ok! My ms nurse said they will do 6 monthly checks for JCV plus annual MRIs. I'm looking at it as an insurance policy for the future! There are several people I follow on Instagram who are really positive about taking it plus user groups on Facebook, etc. It's a tough decision but there are risks in everything. Good luck!
I’ve been on it for over a year. Some dmts work better than others for everyone. I’ve noticed a huge difference on it and knock on wood haven’t had an attack since I started tysabri. I was terrified of pml at first but in the USA you need to be signed up for the touch program where they monitor you for JC virus/pml. I get my infusions every 6 weeks instead of 4 and the risk of pml is dropped quite a bit in doing so. Talk to your doc about widening the dosing intervals. You’ll be fine!