@JasFromTas 

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JasFromTas

Coming off Tysabri...

Hi all! I am wondering what everyone’s experiences are out there with coming off Tysabri? I am in the process of picking a date (have had 10 infusions – no.11 is due Tuesday, may or may not go to 12 – having issues with dramatically rising JCV titre), and the plan (so far) is to come off and 8 weeks later start Gilenya. Has anyone else done this? How has it gone? Issues with coming off Tysabri? Or starting Gilenya? I had fairly active MS prior to Tysabri, 3 relapses in 9 months (including 3weeks in hospital) and have only had 1 relapse since starting Tysabri, so feeling very nervous about stopping. But also scared to stay on! Help/experiences/ideas welcome!!!! Jas
@pommykev

Hi Jas, Been on Gilenya just over 12 months. First week ended up in hospital - irregular heart beat. But fine after the first few days. Now - no side effects and it's so simple with less hassles. Feels like I'm getting some remission at last and no new relapses since starting it. Good luck.

@pommykev

oh - forgot to say - I was on Avonex before starting the Gilenya