Coming off Tysabri...
Hi all!
I am wondering what everyone’s experiences are out there with coming off Tysabri?
I am in the process of picking a date (have had 10 infusions – no.11 is due Tuesday, may or may not go to 12 – having issues with dramatically rising JCV titre), and the plan (so far) is to come off and 8 weeks later start Gilenya.
Has anyone else done this? How has it gone?
Issues with coming off Tysabri? Or starting Gilenya?
I had fairly active MS prior to Tysabri, 3 relapses in 9 months (including 3weeks in hospital) and have only had 1 relapse since starting Tysabri, so feeling very nervous about stopping. But also scared to stay on!
Help/experiences/ideas welcome!!!!
Jas
Hi Jas, Been on Gilenya just over 12 months. First week ended up in hospital - irregular heart beat. But fine after the first few days. Now - no side effects and it's so simple with less hassles. Feels like I'm getting some remission at last and no new relapses since starting it. Good luck.
oh - forgot to say - I was on Avonex before starting the Gilenya