New to all this!
Hi, I'm new to all this, not just the MS but posting anything on line like this. I was diagnosed earlier this year -quite quickly (less than 6 months) after my first visit to the GP with a list of symptoms.
Turns out that 'flappy leg' wasn't connected to my sciatica after all! Now I'm just waiting for a classification but, being 56, it is most likely primary progressive.
Not sure what happens next, just have the feeling that things will develop steadily but hopefully slowly. Have a great nurse who answers emails really quickly and keeps me feeling positive. In fact, I'm seeing her tomorrow - more Gabapentin in the pipeline I expect
Has anyone got any suggestions for how to deal with hand pain especially when it feels as though the skin will burst? When it's really bad holding a glass of something cold seems to do the trick but unfortunately it can't always be G and T!
Hi @gandtgirl and welcome. The first thing is that we don't bite on this forum. Unfortunately, no-one knows what will happen next. We're all different, so one person's experience will be very different to the next. But, seeking the advice of other MSers is a good starting point for you. Just generally, we recommend and healthy diet, with a healthy lifestyle, whilst avoiding any form of stress. As to your hand situation, discuss this with your MS Nurse. Yes, there may be a need to up the Gabapentin. We don't want you spilling your G and T, do we? :wink:
I was diagnosed when I was 53 and it wasn't primary progressive - it's only a very small proportion of newly-diagnosed MSers who are, so don't jump to conclusions. Lots of luck with the treatments/contacts with your nurse. And hopefully get Xmas supplies of Gordon's while the offers are on... x