New symptoms not a relapse?
Hi again
So I’ve just met with my neuro - was told this was to start treatment however it was not the case!
He explained they the new symptoms of neuropathic leg pain with tingling/numbness in March this year he does not think is a relapse at all but is being caused due to an old lesion on my spinal cord from 2019.
He explained that as lesions heal they form scar tissue which can lead to new symptoms.
I’ve never been told this before & i cant find anything online about it. I’m so confused as I was always told any new,sudden symptoms that are persistent was a relapse. This was confirmed by 2 nurses however now it’s not the case at all!
Has anyone else experienced new symptoms from old lesions? 10 months between lesion & new symptoms
Many thanks
Hi @caole-ann_scott, I can somewhat sympathise. I have experienced worsening, and also new sensations (still in the same area) and have repeatedly been told the same. In fact, I am at the stage now where I don't bother to report new things/or ask for advice, as the conversations are circular. The way I see it is to keep taking the meds, and rely on the fact that the overall outcome won't change just because I report it. Does that make sense?
@vixen I’m sorry to hear this. The leg pain/tingling is completely new as my legs were not affected at all last year so not in the same area for me. I didn’t experience any pain at all last relapse. I’m not on any meds at all for ms yet as they need to see proof that it’s active. I was told in March that the leg pain was a ‘mild’ relapse & did not warrant any treatment or a soon MRI however now that’s all changed. Now being told not a relapse but sending me for an urgent MRI to see any new activity! I’m baffled & completely disheartened by the whole thing too. X