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@Bkboo 

Last reply

Bkboo

Gilenya and shortness of breath

I have been on Gilenya for 4 years and this year I have experienced being short of breath, some days its ok and some says Its awful. I have had a Pulmonary function test which was normal. My doctor has me signed up to do further tests to find out whats going on. I think it may be Gilenya, I know its a rare side effect....any one else experience shortness of breath?
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@Stumbler
@Stumbler
 

Hi @bkboo and welcome. Check out this document from the FDA (Halfway down Page 5) :- https://www.fda.gov/downloads/Drugs/DrugSafety/UCM227569.pdf I'm not sure if this helps, but you've done the right thing consulting your Doctor.

@rubyroo
@rubyroo
 

I occasionally do and have been on Gilenya nearly 3 years now. It doesn't last long for me and randomly occurs even when sitting still or at night. Quite unsettling at times but I haven't bothered seeing GP about it. If it gets worse or more frequent I will.