Hidden- the staircase - symptoms
https://youtu.be/tveMmRDrkEM Hi guys, I'm Cathy, an MSer and a producer of Hidden, I worked on Hidden with a focus from development to edit on the representation of MS and its symptoms. One of the ideas I had early on generated from my own feelings of being newly diagnosed in an urban environment, was the feeling of the hostility of cityscapes that seemed pretty ordinary before. That's where the idea of the oppressive never-ending staircase came from! Many staircases have felt like that to me. Streets and stairs, estates, can suddenly disable you when you develop MS symptoms and that can be so disorientating. Likewise the door and lift scene also came from experiences of muscle weakness and lack of coordination I've experienced. I was wondering if anyone else had ever felt like this? Cathy
Hey, congrats on the vid: it's so accurate. That's definitely how staircases look to me. When I first started having mobility issues on top of the fatigue, I started to notice just how many stairs there are when taking the Tube. I switched to travelling by bus wherever possible or would take longer routes to avoid stations with lots of stairs - or really long walks between lines like Piccadilly to Northern at Kings' Cross - for a couple of years. It's still a factor now, but much less so. I also can't carry a full pint and walk to my table because my hand shakes a bit when I'm holding things, so I always take a large swig at the bar to avoid wet hands. Opening heavy doors or jars makes me really frustrated, particularly with the walking stick strapped to my wrist.
We have changed plans because of stairs and layout of hotels. We had reservations at a old court house converted into a hotel near Mt. Rushmore. When they started to take us a steep and narrow stairs we knew I couldn't handle it. They had a tiny room on the first floor we traded for. My husband shows classic restored cars at shows, we had reservations at one show that was 200 miles from home. When we got there we found out the show that was in a parking lot a block away. We could walk down a steep hill to get there or walk the block. We canceled our reservations and went home. My husband likes to go to estate sales on the weekends. He will check out the basement and 2nd floor, I hang around on the 1st floor waiting for him to come back. You have to adapt and keep going, my mother in-law is 95 and uses a walker inside and cane outside. She is also blind in one eye. She goes out with friends and relatives several times a week. She says it keeps her going. We are going to Yellowstone this fall, it is a driving trip and cool temperatures. We will take a different route each way and may pull off and stop at a dozen little towns and road side attractions along the way. It may be a different type of vacation but we will have fun and enjoy it. Potter