@queava05 

Last reply

queava05

Trying to get people to understand

Hi all , I'm getting to a point in my life now that I am sick of people who know s me just think that I am lazy . Yes they see me wobble, forget things, fall , but it drive s me mad when I am having a bad day and all I want to do is go lay down on my bed. Am I the only one who is like this ? All I get is u have to get up and go and im thinking to my self do they really know that it takes all the energy just to make it to the toilet. I know they mean well but sometimes I wish I could just have the power to make them experience in what I go through just for one week. I'm 41 and have been so lucky to have been so good up to now (got diagnosed 14) year s ago . Sorry for the rant but I am reaching boiling point is there anyone else who is in the same position as me . ? 😞
@EdmontonAlberta

@queava05 Methinks you are explaining things incorrectly. Who are these people who see what is occurring yet ignore your challenges? And why are they around when you decide to lie down to re-energize... Family who cares; expect to be pushed a wee bit. Friends - friends will not push you beyond your limitations. As you may suspect from my post, feel free to discard anyone from your life who is not helpful to you... We only live once - have only those beside you who you need to go into battle with...

@queava05

Thank you