Tecfidera
I need some advice..
I have been on this drug for the last 3 years..I have hated it every step of the way..the flushing never really got better for me, it's just unpredictable. I continue to tell my nurses that I no longer want to be taking it, they then push it on me again giving me more tips to try, so I do..and it's no different.
The lifestyle I have doesnt allow me to sit down for big meals before taking it - I NEED my coffee in the morning to be alive basically. I work two jobs...which are either one on on with patients or in front of a classroom of students & as you can imagine having the flushing in those times is less than nice.
I have my check up in June and I am once again going to tell them that I am done with this.
To be honest I have stopped taking the fill dose for the last little while because I just cant take it anymore.
Does anyone experience the same or have any advice for me when going in to speak with them? It's like they wont take no for an answer.
@newfiegirl11 , how have your MRIs been since you've been on Tecfidera? If there's been no visible progress, then this won't help your case. But, having said that, it's your body and your life, so your views are important. Additionally, the stress that this situation is causing you is not conducive to efficient management of your MS. There are a range of alternative Disease Modifying Therapies (DMTs) now available, so do your research upfront so you're aware of what you find acceptable. These links should be useful :- https://support.mstrust.org.uk/file/DMD-Book-Final-WEB.pdf https://www.mstrust.org.uk/about-ms/ms-treatments/ms-decisions-aid These are UK-based websites, but the information cuts across borders.
I havent had any new lesions since being on the Tec..but at the same time I havent been taking it as prescribed for a while now, because I havent been able to manage it..so is it even really the cause of this? Know what I mean? The only other thing I have changed since my last relapse is smoking cannabis (1 draw) after work, and more on the weekends to help with my stress relief & headaches. Who's to say what had actually been helping.