Last reply 2 months ago

What do those of you with relapsing remitting define as a relapse? Since my diagnosis in Sept 2018 after developing optic neuritis I have been plagued with different symptoms on pretty much a fortnightly basis and i’m becoming so disheartened and unwilling to allow myself to be in certain situations in case I wake up the next day with a new symptom! I’m hoping you lovely bunch can share some flare up stories 😊

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2 months ago

I experienced that in the past 2008
Used to cry so much couldnt study or answer uni question hand stopped
But after a couple of years i learnt panicking after each symptom is the worst this to do so is losing my emotions and sadness
Anything dark i was expecting i notice happens
So i stopped that too
I decided to have faith and not feel helpless
Almost challange MS
Now i never experience symptoms almost

Also reduce stress x

2 months ago

Are they new symptoms? Are they brought on by stress, heat, or sickness? How long do they last?

2 months ago

Sorry to jump in.
But from personal experience STRESS kicked it all off for me, the usual stuff, WORK, money and kids!
I loved my job but it took its toll out on me.
Good job my wife used to be a bank manager so that sorted the money out ish.
Kids have left home now, happy days I get to put my feet on their furniture which I kinda make a point of!
Brain and body is slowly giving out so that’s put paid to WORK.
So being as STRESS free as you can really really helps.
Easier said than done I’m afraid.

2 months ago

With optic neuritis it is too easy to let vision symptoms pass. If something feels new or more painful, then do what you’re supposed to do if you think you might be having a relapse. For years I would let the fluctuations go, but finally I woke up totally without sight in one eye. It came back after treatment, but my vision may never be the same. If you think you are having a flare, act accordingly. A few false alarms are better than more damage to your optic nerve. Don’t let anyone tell you it isn’t happening. Safe travels and hugs.

2 months ago

@doxielover , the following article should help you understand MS activity :-

2 months ago

Each new symptom has started after a different set of circumstances to the last so i’m finding it hard to pinpoint a trigger which is frustrating.

My optic neuritis has left me with permanent & significant loss of vision however that is manageable for me. What I’m living with currently is extreme pain and also numbness from the waist down on my right side, it also seems to be creeping up now too.

Should I be considering the numbness as a flare? Should I be telling my neuro each time something like this pops up? The numbness has lasted pretty much a month now

2 months ago

@doxielover My MS specialist told me to report any new or worsening of symptoms that last for 24hrs or longer straight to him and then they’ll help determine if it’s a relapse or not. I’d definitely put a call into your neuro just in case.

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