@hank 

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hank

petition for ocrelizumab

Hi all having P.P.M.S. I was looking forward to ocrelizumab as the only treatment, that is until the nice people at N.I.C.E. said they wouldnt pay for it. I feel really let down , and angry having paid in to the system all my working life , I am wondering if others feel the same, and if we should start a campaign on social media. I am not on facebook but have just come across the site change.org where you can start a petition to raise public awareness and get signatures. If all the people with M.S. and their friends and families signed we could get a lot of signatures, WHAT DO YOU THINK ? anything that keeps me out of a wheelchair for another 7 years is a result by me.! yours hank
@Stumbler

@hank , it is disappointing to say the least. There's already action underway to try and get this decision reviewed :- https://www.mssociety.org.uk/what-we-do/news/nice-rejects-ocrelizumab-for-people-with-primary-progressive-ms

@hank

thanks stumbler, wasnt awareof this but i guess anything we can do to keep it in peoples minds helps