Overwhelmed

Well. They thought it was a pinched nerve. I couldn't walk. It was so weird. I couldn't feel anything waist down and it felt like I was wearing compression hose. My legs were on fire. I kept falling. I had "accidents". Things were blurry. Nothing made sense and they kept medicating me. So i asked to see someone different. They kept doing MRIs of my lower spine thinking I was making it up. Until I finally cound a neurologist. My first lesion was found in my spine. I have 6 others. Brain stem. Brain white matter. I don't know where to start. I work full time and that has been a challenge. I am unsure where to start. I have had 5 days of steroid infiustions first. I have gained like 40 pounds. I am starting a new immunosuppressive therapy next week, Ocrevus. My insurance is fighting me every step of the way. MS is expensive. What a scary time in life. Anyone else feel overwhelmed like this when you first found out? Star
@calliems2002

@astarte_aurora_rother you sound exactly like me with my last flare. I'm still waiting to review my last MRI results but I am sure I have a new lesion on my spine. All your symptoms was exact to what I experienced. Unfortunately MS is nothing but a rollercoaster and we never know exactly when we get on the ride, how long the ride is or exactly where the track leads. I was diagnosed young and yes I was overwhelmed...but I did balance out...it can still be too much but I try to reset as much as I can. I worked fulltime almost 60 a week for my whole MS journey up until 6 months ago...you have to be honest when health and work cannot balance anymore

@calliems2002

The journey needs lots of rest...physical, emotional and mental. The insurance company may have push back but they can not deny you so just keep strong. Lots of friends here and tons of support ❤