Last reply 2 weeks ago
newly diagnosed

Hi all …have recently been told I have MS …. am worried. I miss my mum and dad so much//they would know what to say…..any helpful advice to coping would be really great thank you.. Have been reading your posts and they are inspiring.

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shelley44
2 weeks ago

Hi @joanna_sewell
I was diagnosed last year with rrms and on copaxone which is going good …
What about yourself you dont have much on your profile ..
When I was diagnosed I actually coped better than not knowing what was wrong me for few years .
My aunt also has Ms but hers is progressive she always says to me there is always someone out there worse than you .that is my way of coping by repeating that and also make sure I get a walk done every day ..did you loose your parents. Mine passed away 7 and 5 years ago the bereavement was the start of my Ms symptoms …
I find this group is great especially when your having a rough day x


joanna_sewell
2 weeks ago

Thank you so much for your helpful reply. Yes parents always seem to know what to say ..and they have passed away now. I k now there are people out there much worse off and reading on the FB site realize its not all doom and gloom .Yes my aunt had it and like you losing my parents has brought it home..they would know what to say .Thank you so much for the reply..I find we share alot of the same losing your parents as they were always there and knew what to say …….I hope the group is helpful….thanks again Jo


itsmewithms
2 weeks ago

Hi- It would be nice to know more from your profile to offer you more guidance but you can use the magnifying glass in the upper left to search topics and in the upper right to check message and members.

I don’t know if you were diagnosed via MRI or Lumbar Puncture, What type of MS you have or where you are in the world. This site attracts people from all over 😉 It is crazy how different our health care systems and treatment protocols are in different regions.

Besides checking on this site there is typically a MS Society in each country that has useful information and other sites as well. This is one example of an article for the newly diagnosed https://www.healthline.com/health/multiple-sclerosis/what-ifs-after-diagnosis?slot_pos=article_2&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=multiplesclerosis&utm_content=2019-10-10&apid=29101565#takeaway


stumbler
2 weeks ago

@joanna_sewell , we all miss our parents, once they’ve departed. But, they’re still with us, so listen for them and you’ll hear what they say.

They’d probably tell you that life can throw some curveballs at you, but life will still go on. So, not to worry…….


joanna_sewell
2 weeks ago

Thank you so much for the replies and support. It’s true what you say. Parents would now what to say….always make you feel better.
Am in the uk….. Leeds. Will look in to the articles you have suggested.thanks again Jo………


ruthyb
2 weeks ago

The best advice I had was to divide the day into 4 periods. So if you’re having a bad morning it doesn’t mean the whole day will be bad. It’s quite possible the afternoon or early evening will be good.
And if a doctor says days/weeks this could quite easily mean months so patience can be useful (although not always easy) xx

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