Hi I’m looking for advice really or other peoples experiences, so I found out I have demyelination in my spinal cord upper and it caused by MS at first I was really scared cried a lot but I’m getting used to it I guess. I have a lot of pain upper spine and back shoulder neck and back of head, I get a lot of spasms in legs and feet cramps I suffer with facial twitches and get very very fatigued. I’ve always had anxiety and depression and this has become worse lately the medication my consultant put me on doesn’t help it makes me feel so sick I take oramorph to help me rest but I was wondering what can I do to help with my pain ?? And what helps I try to stay active but as each day goes by I feel worse I prob have one good day a week I feel so low especially as I have young children and I’m just too tired to do anything with them 😢😢 x
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