I am here we can talk whenever you want

@marialeic, just join in or start a subject going, as you have done. There are a range of active members, from newly diagnosed youngsters (well, young adults!) to us older campaigners.
So, a wealth of experience. If you want to talk about it, we’ll discuss it.

Here’s a view on chemotherapy in the UK:-

http://www.mstrust.org.uk/atoz/chemotherapy.jsp

@marialeic pull up a chair, just get the first round in, alright? 😉

Hi we are all here if you need us and us old one”s lol

@marialeic I was 23 when I was diagnosed, I’m 28 now. I had two years on Copaxone but I started relapsing again so I’m now on Tysabri and its working a treats, 18 months without a relapse.

We’re in a better position now as patients, more choice of more effective treatments. A pill that you take daily has just been licesed and hopefully campath will be soon. Last time I checked I was also negative but if I did change to positive I think I’d stick. Your health team should be monitoring you for signs of PML, I’m not saying it will never happen, but there are steps to follow should it start happening.

Crossing the road could see you dead or severly disabled, but we still do it. We way up the risks and decide if its safe or not and that is life, just one big risk, so are you ready to play the game?

i’m not familiar with any of the drugs listed above. following diagnosis 3 years ago, neurologist went through some options but i refused them, saying i didn’t like the ‘exchange’ rate meaning feeling like i have ‘flu every other day to reduce relapse by 1/3.
he then asked if i wished to join his trial. i agreed and have been taking Dacluzimab subcutaneously monthly since, though maybe placebo for about one year at the start.
i have had only one relapse since and that was midway through the last 3 years. as side effects, it’s possible that i have developed a sort of seasonal eczema, though dermatologist said it’s not a drug reaction.
all in all, Dacluzimab appears to be fairly effective, but remains un-llicensed at this point. i believe there was a similar drug in the news recently, which i’m guessing is related as it ends ‘zimab’ i think.

i am 26, i started experiencing symptoms over a year ago and have only recently been diagnosed. I dont know anyone in there 20’s with this disease never mind older. Its very good that these kind of site are here

Hi Im 23 was diagnosed at 18 I dont know anyone with MS either so I know how u feel!! I started on copaxone it didnt work for me either then I was on Rebif that also didn’t work so now Im on tysabri for almost a year and havnt had a relapse thank god Im JC positive but I think I will definately be stayin on this drug regardless they keep a really close eye on you with scans and everythin to watch out for signs of PML its changed my life x

Hey I’m 29 and have been diagnosed about two months now although I did have many different symptoms for the last year and then three relapses in six months. I’m planning on starting rebif in January, although I have heard mixed reviews. I don’t know anyone with ms although my bosses mum has it so I have had quite understanding support at work which has been good.