@Macattroll2 

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Macattroll2

Lemtrada treatment???? Anyone tryed it

Hi there I'm just about to make the biggest descissions in my life about medicating my ms and felt scared by what to choose I have 4 options 2x tablet form 2x iv form one being lemtrada that I'm swaying towards and wondered if anyone has been on it yet if so could you share your experience with me xx thanks
@Stumbler

Lemtrada is a bit of the "new kid on the bock" in the UK, as far as treatments are concerned. You've probably read this, http://www.mstrust.org.uk/atoz/alemtuzumab-lemtrada.jsp . And there may be something here :- http://www.ms-uk.org/lemtradaarchive . Lemtrada, or Campath as it was called then, was trialled in Cambridge. As far as I know, the treatment consists of two annual infusions, which basically destroy your auto-immune system, allowing it to rebuild without the myelin-damaging charateristics. I hope this helps.

@Crackers

Hi, I had it in 2009 and 2010. I haven't had a relapse since taking it, just a few minor problems brought on by other health issues. My symptoms have vastly improved but not gone away completely. My main problems were walking, balance, brain fog and bladder issues. My walking has improved, walking longer distances now and not so robotic now. My balance only gets wobbly if I've been over doing things and the brain fog has gone completely.i still have bladder issues but they are manageable and have stopped taking Detrusitol. It wasn't a walk in the park. The first time I had the infusions I felt dreadful and was off work for 4 weeks. I felt so tired and generally yuk I wondered if I had made the right decision. But after about a month I felt so much better. The only thing is I now have an over active thyroid. If you choose to have Lemtrada you may not feel as I did at first so don't let that put you off. The improvement I've seen has more than made up for it.