I have never posted on a site like this before but I need to feel there are others out there like me, so I thought I should take the plunge and introduce myself.
I’m 51yr old mum of two almost grown-up boys and have had an MS diagnosis since 2001. Apart from periodic numbness and tingling in arms and legs, and a bout of optic neuritis, things have been pretty OK for me til the last few years. Although I’ve had no specific relapses since diagnosis my toes/feet/legs have slowly been getting more and more numb over the years and now they are frankly just really weird to walk on. Aiming to keep mobile, I walk the dog across the Downs daily and go to the gym twice a week – and even did the Couch to 5km programme to get me running (jogging!), although I still can’t manage 5km in 30 mins!! Ever since diagnosis I have been tweaking my diet and started immediately on the BBD back in 2001. Since then I have tried the Overcoming MS diet, the Specific Carbohydrate Diet, and even the ketogenic diet but for now I am gluten and dairy free, with no red meat and very low sat fats. I had some gene testing done and that confirmed I have the APOE 4/4 snp which for anyone who’s not heard of it basically means you are not good at processing fats and it is important to keep the sat. fat levels low, oh yes and also avoid alcohol and smoking….. well I can manage two out of three but a glass of vino on a Friday night has to be had! I’ve never been offered drugs and have now been told I have SPMS which is a tad depressing as it seems there are no useful treatments to even consider….. The menopause is hitting me hard and I am investigating HRT/bio-identical hormone treatment to try to even things out a bit as my symptoms gets so much worse every month. I’d love to hear from anyone else who has gone down this route and how they got on. I look forward to reading your posts and getting to know you all better.
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