How I got here.
Hello everyone.
Firstly can I wish everyone all the best in their fight against MS.
It was a Neurosurgeon who referred me for tests after noting high contrast areas on MRI’s done for Trigeminal Neuralgia (which ramped up in this last year)prior to Gamma Knife treatment.
The TN is fixed thankfully and is thought to have been caused by lesions in my case, rather than nerve compression (the usual culprit).
I was looking to get back to full health after the TN and not expecting a probable MS diagnosis, but it turns out MS can cause TN so it’s kind of an “out of the frying pan and into the fire (or out of the fire, back into the fire) situation.
MS seems glaringly obvious now and symptoms I thought were induced by years of heavy medication for the TN persist (fatigue,imbalance and vision problems) even though I no longer take them.
Lp and latest MRI results are in and being forwarded out by my Neurologist, it feels like we are simply crossing the T’s and dotting the I’s.
I’ve always been an active outdoorsy type and not written off the possibilities of getting back into it if treatments improve matters but for the moment I’m not receiving anything and my return to work has been difficult (i’m using up the last of my annual leave this week as I’m trying to avoid poor attendance procedures).
If this all sounds a bit “doom and gloom” it’s not how I feel, these are just the facts as they stand and I’m kind of just sitting in the corner of the ring (gloves off) and waiting for the bell to go.
All the best.
Hello @geee_h, do you have an appointment to actually see the neurologist or are you being sent the lumbar puncture results? That would seem a little unusual to me. As for your workplace, the law is there to protect you, especially if you do get a diagnosis of MS. Sounds like you are able to string some past symptoms together to give weight to a possible diagnosis. If you don’t have an appointment with the neuro soon, make a pest of yourself to get seen. If it is MS you can be talked through the options, and there are lots. All the best, keep us in the loop 😊
Hello @vixen. I’m not entirely sure who’s getting the results! I figured the Neurology secretary was referring to my Gp when she said they had them and would post them out, but I have received copies of communication between them before. That was a week and a half ago, I rang my Gp a few days ago and they hadn’t received anything, the Gp receptionist said “you’ll probably get something before we do” . I’ll ring the neurology dept again and clarify the paper trail and see about an appointment. Thanks for the advice, all the best.