Last reply 1 week ago
Hi everyone! New to MS forums

Hi all, I’m new to Shift MS, nice to meet you all. I got diagnosed over a year ago, but haven’t talked to anyone else with MS before, so just looking to say hi and catch up with someone who might be having a similar experience. How do people deal with day to day stuff? My most annoying thing is work stress which makes my symptoms wayyy worse. Cheers, Dec

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1 week ago

I was diagnosed in 1988 , by MRI, this strange disease hasn’t been easy. Stress is indeed what makes the symptoms worse. And sneaky over heating. Is very dangerous…
To help you cope measure your energy to be used in small bits …..accomplish small plans and pat yourself on the back. Being too sad or too happy can sap your emotional storage cells. Under achieve, and save your best self. Don’t drink alcohol, just water, tea and decaffinated drinks.Laugh at yourself and pray for strength. Watch your thinking … Put negative self talk in the trash where it belongs, be brave, and CHOOSE THE MOST POSITIVE THOUGHTs TO PONDER .in each situation. ask for help. Don’t get overwhelmed.
Write important stuff down ,be organized. To help memory.
Be kind , it take a lot of planning to be successfully sick and tired. 😋MS is a mystery but think that Declan is the best one to steer through it . You are precious and highly blessed , one to lead this busy world in seeing through all the pain and disappointment and running a clean race , with Gods help. He (God)🤓didn’t make you sick , it’s another symptom of this broken world. MS
is not YOUR FAULT. Help others cope.
I’m giving you random thoughts on this topic. Hope some might help!

1 week ago

@declan-perry-1 hi👋

Avoid stress, it’s not good for you. It’s not good at the best but with MS it can be worse! Heat or in some cases,cold (me) can make you feel worse. We are all different and experience MS in different ways (RRMS, PPMS, SPMS.There is no playbook on how it is). I try (my wife says I’m very trying) not to say “can’t” or “suffer from” as these seek sorrow which is something I don’t want. I prefer “don’t” and “live with”.

There are plenty of folk here who have lived with this for a while who can and will help when you ask for it, remember asking for help is not weak but strong as it takes strength to know when you need a hand.

Keep on keeping on.

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