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@pockets 

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pockets

Insomnia

It’s 2am here in the uk. Just wondering if anyone else suffers from insomnia
Lowestoft, United Kingdom

@BogWytch 

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BogWytch

NMSS in the US

I don't know who needs to hear this but the National MS Society in the US is absolute garbage! If I could share pics, I'd show the proof !! Over two years ago I was banned from the NMSS Facebook group over RELIGION*! When I talked to the group administrator, he spoke to me very disrespectfully, ref...

@Swannie 

EditedLast reply

Swannie

Everything just stresses me out.

Just trying to renew my passport, filled out the form and sent it off. But now I’m questioning myself whether I did it right or not. I was so stressed and anxious at the time I forgot to get my partner to double check everything. Now I’m worried it’s all gone wrong…everything’s a bit off a blur. 😭�...

@jona 

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jona

MS & health Watches ⌚📈🚶

How do you feel about them? I have been using a Xiaomi Smart Band 9 and I found it definitely helped my sleep and movement routines. Do you use such a device and if not what makes you critical? I didn't look too much into the down sides and am considering getting a better one now... any though...

@Henrietta 

EditedLast reply

Henrietta

Fampridine

Had a physio appointment today at my hospital in central London so obviously I asked about Fampridine. Here are a few things which may be relevant for other people in England: - Yes everyone is asking for it! - As it’s just gone off patent it will be the generic version and will take a while for pr...

@steviilillian 

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steviilillian

Advice...

If you could go back in time, what is one piece of advice you would give yourself when you first got your MS diagnosis?

@skezz 

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skezz

Lonliness

Struggling a lot recently with lonliness, it’s not the same talking to people online, there’s no connection that feels enough to fill that space of really having someone there for you. Not sure where to go or who to turn to and i struggle to make friends as is without the added no energy and other M...

@Flennyz 

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Flennyz

Between a rock and a hard place

I’ve been on Kesimpta for almost 4 years and its been spot on for me as a DMT. Last year I got diagnosed with microscopic colitis and during a recent flare of that I had a pseudo relapse of MS. My consultant is thinking to take me off Kesimpta and I’m feeling a bit apprehensive about what the altern...

@Diedre78 

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Diedre78

Bladder / Bowel urgency

Hey. I am working with a practioner who suggested making friends with other MSers with either bowel or bladder urgencies (I seem to have both). Sharing stories. Normalise the topic. Understanding each other. And so on. Anyone?