What lead you to your MS diagnosis?
I would like to start a thread to find out how others found out lead others to their MS diagnosis... I found out I had MS by fluke and for that I am extremely grateful! I started out with what I can only describe as ‘my own legs not feeling like my own’...I got bloods done and found out I was deficient in vitamin B12, got the injections and 6 weeks after the last one I had to get bloods done to check my B12 levels. Bloods came back and an antibody level in my bloods wasn’t right and the GP referred me to a rheumatologist to be safe. Rheumatologist sent me for an MRI on my spine, radiologist requested an MRI of my brain after the initial MRI as they noticed some lesions on my spine but at the time weren’t sure if they were tumors. Had the next MRI, rheumatologist referred me to a Nuero and I was diagnosed with MS! Let’s hear your story ❤️
Hey Melissa_larkin I had a weird sensation in my legs, slight pins and needles, but I kind of just ignored it. Then I woke up a few days later, couldn't physically stand or walk and my left arm was limp like a rag doll...no feeling. Scary stuff! Thought I'd had a stroke! Was in hospital over a week, lots of tests and scans. Went home still unable to walk given strong steroids over Christmas that slowly improved it, and was diagnosed formally by a neurologist a month or so later. It's crazy thinking back to that! xx
I woke up with double vision one morning, I waited a few days to see if it would go away but it gradually got worse. So I went to see my GP and he treated me for 6th nerve palsy, so he referred me to the eye clinic at the hospital. Spent 10 hours in there mainly waiting to be seen. Got a few eye and blood tests done and a CT scan which didn't pick up anything. Seen around 3 different doctors all telling me they didn't know why I was seeing double. So I had to wait a month or 2 on an MRI on my brain which picked up inflammation and active lesions. I got my results to that when I was seeing my orthoptist, he suggested I had MS and referred me to neurology. My first appointment with my neurologist and she diagnosed me with RRMS. Was given steroids to help with my double vision but they didn't help. I've had 2 more MRIs since diagnosis all picking up new activity in my brain & spine. Since my last MRI I've started Ocrevus treatment.