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@seaairsally 

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seaairsally

Autoimmune Neutropenia after Lemtrada

Hi community, Does anyone have experience of neutropenia after Lemtrada? Horrid to have to deal with extra things on top of the MS. If anyone has I would love to hear if it’s reoccurred/needed treatment or went away naturally. Thanks, Sal
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@Redpimento
@Redpimento
 

HI I have had MS for 35 years. This year I was diagnosed with breast cancer. I had an op, chemo and radiotherapy. There are still 2 treatments to come. All I can say is keep positive and be kind to yourself.-- because you're worth it.

@trishn
@trishn
 

Hello, Yes I developed ITP and severe neutropenia in December, 2019 three years after my second round of Lemtrada. My platelet count dropped to 3. I was given 4 units of blood platelets and steroids. Then in February I started taking Eltrombopag and my platelets have stayed within the normal range. Right after I developed ITP my neutrophils started dropping. Then have been staying mostly between .100 - .300 for the past 7 months. I have not had any issues with infections so far. My MS doctor wants me to have IViG treatments, but so far my insurance company has refused to pay for them. My doctor has filed a formal appeal and we are waiting on their response.