@rose042012

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rose042012

"Surface" numbness

Hello all! I have had "surface" numbness for over 8 months now in the bottoms of both feet and most of my right let - I will attempt to describe the issue... I have full strength in my right leg and both feet. My numbness is only at most a quarter inch/skin deep. The bottoms of both feet are numb, but not the tops. My right leg feels this numbness from my ankle to my hip, but not the back side or outer most side of my leg. When I touch my bare skin it feels like I am touching it through a jacket or something. I am not having any trouble walking or exercising. I had an EMG and it came back clear. I do not have any lesions in my neck or back. Has anyone experienced this as an MS symptom? Any help would be appreciated :) Thank you! Rose

Stumbler

@Stumbler

Hi @rose042012 , Sensory issues are unfortunately part and parcel of MS. See :- https://www.mstrust.org.uk/a-z/altered-sensations .

Avengr13

@Avengr13

Hi Rose! Oh yes numbness is a constant companion of mine. My husband loves to stroke my back lightly. I get the heeby jeebies so to speak. Numb but able to feel a light touch and it almost hurts. Sensory problems are a common problem when your nervous system is faulty.

Katy79

@Katy79

Hi Rose, This is the only symptom I have had (and think you've described it beautifully!) - and led to my recent CIS diagnosis. I had 5 days of Medrol tablets and my feet are now my own again. K

naomih

@naomih

Yep. Me too!

lilbird

@lilbird

Yes @rose042012, I had this everywhere from the neck down for a while, still persisting in my arms & hands. Sometimes if I overdo it (doesn't take much) my feet get numb & tingly & sometimes for no particular reason I get it around my ribs along with the "hug" :)

rose042012

@rose042012

Thank you @orlando27 I have not heard of pregabalin and will look into it. I have tried to stay away from MS sites and groups because as a 25 year old it actually made me more upset. I am really glad I stumbled upon this website/forum as it has already helped me a great deal! @lilbird I guess I need to learn when to slow it down. I haven't experienced the MS hug yet and thought the numbness was from working out, since I started that around the time the symptoms started. I will try to slow it down :)

laurelrose

@laurelrose

Hi Rose, Your symptoms sound all too similar to mine - I have the same issues with the bottoms of my feet (only the bottoms), where sometimes I can't gauge how secure a shoe is on them. I have the creeping numbness on certain parts of my legs, middle, and hands. Often this shows up if I have been touching something, or an elastic band or hem of a garment is against my skin. It's not painful, just irritating. What do you do for exercise? I take boxing classes three times a week, and do light cardio workouts at home on my "off" days. I have been told to take it easy, but I find that this kind of challenging exercise keeps my body stronger and my coordination better. All the best to you!

rose042012

@rose042012

Hi @laurelrose It is great to chat with someone who has some of what sounds like the same exact issues. Yes it is irritating when a hem hits my skin! That's such a great way to put it. I also do light cardio a few times a week, but I also workout at a gym the other 3 days. I mainly work with weights - dumbbell and kettle bell - deadlifts, swings, halos, Turkish get ups; mainly small spurts of cardio. I also do a lot of balance exercises, such as single leg deadlifts but I don't use any weights, just really practicing balancing. I work at a gym and so I have great access to trainers. Something that has really helped me is the Wii Fit Balance Board. I "try" to do about 15-20 minutes a day and it has really helped! It is great that you stay active! Do you do anything diet wise? Great to chat with you! Rose

pinkie

@pinkie

Hi @rose042012, @laurelrose and everyone else who's been involved in this thread - I was at my wits end. After 4 years on Avonex I was switched - and happy to switch - to BG12 in September. I'd read good things about it, and was looking forward to not injecting any more. I hadn't had a episode for all the time I'd been on Avonex, so I thought everything was fine. Then in November I had an eye inflammation that effected my vision. It hasn't got better. Then my right ankle developed persistent pins and needles in February - this has not subsided, it's just grown so my leg is numb right up to the knee. And all the while I carry on taking my pills, twice a day, and I can't think why I'm still doing it. Time for new meds, I think! Julie

TracyD

@TracyD

@rose042012 What you're describing (so eloquently) was my experience to almost my entire body for such a long time. That awful feeling when you realise that you're aware of a piece of clothing moving because of how it pulls on you but the skin underneath can't feel it :-( but it you poke and prod at the offending body part / area - the meat underneath screams. :-( Sometimes it comes and goes, sometimes it comes and doesn't leave :-( In my case as @orlando27 posted when it came to DMT's Lemtrada was my choice. It is the only one that I believed would not just stop MS in it's tracks but give me an opportunity to heal while my body wasn't under attack. My feeling is now completely restored (although if I really overdo things my tummy will still appear to go numb for a while until I rest) all my other symptoms are gone and life is great xxx

pinkie

@pinkie

Thanks @orlando27 and @rose042012! I've got an appointment with the neuro later this month (wow, very fast!) and I'll discuss it then. I am a bit of a crybaby, as I'm not really that ill - and the loss of feeling is only in one leg. And hey! I'm lucky enough to have 2 eyes. I've looked at the Lemtrada profile and they don't like to give it to you for more than 4 years - but hopefully things will have moved on in that time. It's only been 4 years since my original DX and it wasn't even available at the time. What we ALL want is an infusion that will take it away for ever, and I don't think it'll be too long coming ... Must be amazing, @TracyD, to have feeling totally restored! It sounds like a veil has been lifted so you can see how wonderful life is :-) And it is. Even with a tingly leg and dodgy eyes!

isaacson72

@isaacson72

I didn't have that with numbness, but I did with pins & needles/tingles. My feet were tingly 24/7 (sometimes the bottoms of my feet felt lumpy too, like I was walking over big rocks). Then my legs. But whereas my feet were tingly everywhere all the time, it was patchy in my legs. Like the left front thigh, or behind my right knee. When I'd walk, then it would be everything from my hips to my toes but just sitting on the couch, it was patchy. Very odd and from what I've learned, very normal for us!

TracyD

@TracyD

@pinkie On the lemtrada comment about 4 years ... Just to clarify Lemtrada is administered in 2 sessions 5 consecutive days in the first instance and then 3 consecutive days 1 year later. After that unless you relapse again you don't need to have another treatment at all. A high percentage of people from the trials 7/8 years ago have NEVER needed a 3rd infusion of the treatment because they haven't relapsed since the first one. Besides Oriclusi-whatitsname is coming soon so there will be more fun stuff to play with in the future if your MS doesn't learn it's lesson the first time :) xxx @isaacson72 ohhh the feet thing - they're numb but it feels like you're walking on horrible lumps of scratchy cotton wool and they're wedged between your toes :( I hated that - don't miss it one bit :) xxx