@hollylb10 

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hollylb10

Tecfidera

Yesterday I went to see a consultant to discuss DMD, I was offered Tecfidera....does anyone have any thoughts or opinions on this as a first time drug? I was hoping to be offered something else that is disease modifying. Lemtrada is out of the question for me apparently x
@Stumbler

@hollylb10 , there's an interesting talk regarding DMDs from last year available here:- https://youtu.be/E01Yjr7xrtg?t=5 It's worth watching

@insomniacoffeelover

Hi Holly, I am on the Tecfidera almost a year now, I had previously been taking Rebif. The Tecfidera is much better, the only side effect I have is skin redness ('flushing' which passes after a few minutes) and an upset stomach which didn't last long. When I was on the Rebif, if I didn't get a good nights sleep I was dead to the world the next day and felt like i'd been run over by a truck but I don't get any such side effects with the Tecfidera. I got an MRI a few weeks ago after 10 months or so on the Tec and 2 of the lesions had actually decreased in size. But MS lesions swell and shrink so I'm not sure if that is down to the Tecfidera. you should definitely consider it, I'm not brave enough to try control my MS through diet and eating 9 cups of greens a day etc after seeing my dad's MS journey. And with the TEcfidera you don't have the hassle of injecting of yourself :) hope that helps :)