@coleman1980

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coleman1980

My diagnosis

I got diagnosed with ms in November of 2019 so as you can all imagine I am at the start of this journey of discovering ms and how it will affect me. Finding my new normal around what's best for ms and now working with my symptoms and learning to live with them know they are things that are what I am now. Trying not too feel like a hypochondriac after being told to listen so my body more and do what's best for me and not sound like a moaning old git when I'm struggling cause it's the ms not me.

Lisa_Morghan

@Lisa_Morghan

Hi I'm Lisa you look very young I can give you some advice on what I feel works !!! Keep in mind MS has been around for YEARS doctors medical field did not know what it was so no real medication for it !!! They did try " interferon" with no success now they do have actually medication that helps slow any more Progressive!!! Feel free to ask me my sister is the one our family that got "Screwed" she was 22 now 64 and bedridden 2 nurses am/pm seriously sweets do pay attention to yourself follow your gut not your heart your gut tells the "truth" be safe eat well healthly as possible!!! 👀⚘💦 if you want I'm here lisa

coleman1980

@coleman1980

I'm not that young at 39 however they have told me from the lesions I have got they look like they been there since I was a teen. I have always eaten healthy in general. My symptoms are the reason for my diagnosis but I was going to the doctor for a cure on these not to be told I got a life sentence with ms and I can only learn to live with my symptoms now

cakeangie

@cakeangie

@coleman1980 - welcome to this club. I can’t recommend it enough but keep a diary of symptoms, feelings (body and mind), sensations, sleep patterns, anything and everything. Also notes on eating, drinking and life in general. You can start to track triggers and then when you know what they are you can start to manage them. I know I don’t do well without at least 7 hours sleep, I know I am better in a morning than a night, I know excessive dairy causes me migraines and fatigue. Basically start to research yourself and take back control and become a knowledgeable YOUNG man rather than a moaning old git! Final warning, real friends and family will never think you’re moaning, they will just care. One thing about this journey, you learn who your friends are!

Lisa_Morghan

@Lisa_Morghan

There's no doubt this gross ugly disease can "Fck" us for sure again I'm sorry in my own family "Mother Sister Me " have been plaques by this so I get it...... mother has passed my sister is bedridden so for myself I'm still walking not fast but I do get out the door and walk...... "Cane" just be a researcher google is mans best friend ask it anything answer's truthfully the scary part for me is I have grandchildren!!! ¿¿¿ ya I honestly can't stand the thought... 🙈 stay strong ask me anything you need oh my Dad was a doctor he didn't know how to fix this !!! Sad face 👀😵🥴🧤

coleman1980

@coleman1980

Doctors have told me it's best to make sure my daughter takes a vitamin D supplement every day I just hope I ain't passed this on too her

Lisa_Morghan

@Lisa_Morghan

I hear that the good side to this is they "Doctors " at least know what the "fck" it is seriously do your homework look stuff up google become involved with any feel good activity possible!!! Best to you and family just dont let it get you down........ ⚘🦋✌

Lisa_Morghan

@Lisa_Morghan

Also the DNA product called [email protected] is a very reliable way to find out about this disease called MS theres 2 different options the 1 st one gives your ancestry plus your medical history maybe that can give you answers just a thought !!! [email protected] 🧤👀✍

d1zzy

@d1zzy

Ps- you are allowed to moan cos sometimes it’s pretty shit!! That doesn’t make you an old git tho 😀

Vixen

@Vixen

Hello @coleman1980, great that you’ve found Shift. It’s all very new for you, so make sure you give yourself lots of time to absorb the diagnosis. Most people would say it takes about a year. To be honest, I’ve been diagnosed three years and still haven’t quite established my new normal, given that every day is different. But, I do have a normal routine now which I try to stick to. You sound quite upbeat, which is your greatest asset. Stress has a huge impact on us for sure. I would advise to stay clear of Dr Google and only use official sites like this, MS Society/Trust, Barts blog etc. The search button above is good for skimming through past posts on loads of subjects. Have a good day, watch out for Storm Ciara!

coleman1980

@coleman1980

I am starting to find alot of help and support on insta a skinny many wanna offer help and advice if anyone wants to follow me just ask so we can share the support that's out there

ItsMewithMS

@ItsMewithMS

Regarding genetic links there is a higher chance of your children having MS but given that MS is only like 1 in 1000 and their chance is 7x higher that is still only like 7 in 1000 but taking Vitamin D when you live in a northern clime is likely a good idea for all ;-) There are also other risk factors to avoid and keeping to a good diet and clean lifestyle is all good. I constantly refer people looking for answers to Dr Boster's you tube channel as he has so much good stuff out there and his message to the newly diagnosed is a great place to start. It covers some of what you talk about above and his "4 for 4" video would be another good one that talks about management techniques for MS that you may be interested in- https://www.youtube.com/watch?v=wvQXygHtYzc&t=32s https://www.youtube.com/watch?v=TSr03KmGDIM Good luck - welcome to the club? that no one wanted to join...you can also use the little magnifying glass in the upper left to search for past discussions between forum members that you may find helpful-