@callahang 

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callahang

Hello!

Hello everyone! I have an update regarding my MS situation- I posted a few weeks ago that my first neuro consult was scheduled for June 25th, but, I called the MS clinic and told them I am having worsening symptoms and in extreme pain (occipital neuralgia+bilateral trigeminal neuralgia+possible MS diagnosis) and they informed me that my GP had not included any of that info in her report/ referral to the MS clinic. They said had they been aware of my circumstances they would have never scheduled my appt in late June, I cried while talking to the woman on the phone, and she said "How's this sound, I'm booking you in a week from now, is that okay?" A week has come and gone, and tomorrow is my first-ever MS neuro consult! I am very excited, quite a bit scared, but, I am looking forward to getting some answers about my brain. Does anyone have any tips for the first MS neurologist visit? What does it entail exactly? What do I need to know? Experienced MS folks, please feel free to chime in with your thoughts. I would love to hear from you! Newbie here, and I need all the help I can get. Thank - You! :) To anyone who is struggling with medical system backlog, and frustrations with docs I 100% understand, but, advocate for yourself as much as possible. Had I not called the MS clinic to inquire, I would have been waiting until mid-June for my appt.
@deano

They will book you an MRI, blood tests, and have a chat with you about your symptoms. good luck

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@callahang

Hello @deano Thank you! :) I have written down a list of some questions on my mobile, and a list of my symptoms as well, I know I will probably need new MRI scans done, possibly (mine were done 4 months ago, so probably not the most current) I am looking forward to meeting my neuro doc. I will update my post once I have had my consultation to let you know how it went. :)

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