@TaraKing

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TaraKing

Uhthoff's syndrome and exercise

Hi all I am wanting to start exercise but every time I start within minutes I suffer Uhthoffs Syndrome and my bad eye - ( ON) gets bad. I have bought some cooling gear, but my question is do you just keep exercising or should you stop. If I stopped I would only get to about 3 minutes of exercise and would have to rest. Does anyone have any advice. At the end of my first relapse with Optic Neuritis in one eye. ( 2 or so months ago) . I am really keen to get back into exercise. Thanks

Stumbler

@Stumbler

@taraking, I appreciate your desire to exercise, but your body is asking you to be moderate. Could you just exercise in short bursts, allowing yourself to recover before the next burst and see how it goes? Or alternatively, look at low impact exercise like swimming, where body temperature is regulated for you.

TaraKing

@TaraKing

Both excellent ideas. Thanks @stumbler

Ahmed

@Ahmed

Swimming is probably the best. But if you can't swim or don't live near a pool, outdoors cycling is a good alternative. Low impact and you generally don't overheat. Unless the weather is hot of course or don't live in a hilly town. Exercise is great to lay off co-morbidities in the future.

cameron

@cameron

Yes, swimming because you can make it as aerobic as you want. You could top that up with Pilates or yoga, which would target specific muscle groups and keep you stretched. As I have found, however, classes do vary hugely in intensity and there are a lot of variants of both activities. (Largely) non-aerobic Pilates is the Bodyform technique. I find this very good and in fact it's very like having physio, so would be the perfect complement to swimming.

TaraKing

@TaraKing

Thank you all I appreciate you coming back to me. I am on to pilates and swimming is a great idea for our Australian summers. Have a fantastic weekend

Joojoo

@Joojoo

I have the same issue. Uhthoff's & ON. It is stopping me mountain biking (it's just not safe!), but I have taken up trail running instead. I have fallen over a few times, but it's nothing like a bike accident! You will probably notice that as soon as your heart rate increases, your vision worsens. Your heart rate and your core temperature will exacerbates MS symptoms. What exercise doesn't do is increase the frequency of relapse, or prevent you from recovering from relapse. Keep doing whatever exercise makes you feel good. MSers can really benefit from high levels of physical activity - it holds of the comorbidities, it keeps the rest of you healthy, and it makes your brain synthesis home-made happy drugs!

TaraKing

@TaraKing

Thanks @Joojoo so you just keep going despite losing vision - this is kind of what was getting too. If I stop when it happens I would only exercise for 3 minutes. Keep trail running that is fantastic - Tara

TaraKing

@TaraKing

And thanks for the advise

Joojoo

@Joojoo

My gawd! I've just re-read my post! I must apologise for all the typos - spending all day at the computer gives me text blindness. Sorry! Yes, I just keep going despite the symptoms. There is no pain, and it is simply down to making my poor brain try & deal with the changing levels of information it receives through my right eye. My ON started back in January, so it has been 10 months now, and still my vision "whites out" upon exercise. I'm not sure the Uhthoff's will ever disappear, so it's just a question of getting used to it, and not letting it get in the way of living your life to the full. For the first few weeks, I tried using an eye-patch, but it just got really sweaty and uncomfortable, so I gave up on that. Good luck with it!

katd01

@katd01

I was describing this to a friend the other day - thank you for giving me a name for it!! Obviously need more education Xx

TaraKing

@TaraKing

Thanks @joojoo great advice I am getting back in the horse, but at a sensible moderate pace (thanks @stumbler) have a great weekend all

AussieKylie

@AussieKylie

@joojoo I had ON last year and I've noticed the "white out" when I get warm exercising or over exert myself. If I'm outside walking and the white out starts, I just slow down ('cause I still have to walk home). If I'm at the gym and it happens on the treadmill or stair climber I find I'm pushing myself too hard and I have to pretty much stop before it gets worse. Don't give up on exercise as it's very important for physical and brain health. Maybe try to exercise where it's air conditioned or where there's a fan you can put in front of you. And if you exercise outdoors do it in the cooler parts of the day. Good luck