@SamBillington

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SamBillington

Going out out.

Hi all, the amazing Niamh is taking over our Youtube channel and sharing her tips on managing MS at music festivals - yes she is going out out to the Electric Picnic Festival in Ireland - follow her festival survival guide for MSers over the weekend over at our Youtube channel - also please get involved and share your experience's of how you deal with those heavier weekends: https://www.youtube.com/watch?v=zwnq8zZJ6a4&feature=youtu.be

Vixen

@Vixen

This is a great idea! Will these be posted on this site? I am an avid music fan and the thought of giving up music festivals was heart breaking when I was first diagnosed. I went to one last year just for a day rather than the three day extravaganza so will be very keen to find out how Niamh gets on, thanks!

SamBillington

@SamBillington

Hey @vixen - you can follow them all over at our Youtube channel here: https://www.youtube.com/user/shiftdotms?sub_confirmation=1 We hope you find them helpful, Niamh will be posting them throughout the weekend - we'd also love to hear your stories and tips! Thanks Sam

SamBillington

@SamBillington

Next video is live guys: https://www.youtube.com/watch?v=0sbd_-VwFK0

ItsMewithMS

@ItsMewithMS

@sambillington I have subscribed and will watch as they are presented. I tried to get something like this started with my posted "a few of my favorite/required things" so we would share what we have added or do in our life to make it easier with MS. They may also help others with physical or cognitive challenges as we experience with MS. I posted that my new car (Rav4) with a navigational system is so wonderful. I was getting confused and lost when trying to find places and the nice calm voice giving directions and the displayed map help immensely and give me the courage to go places, do things and meet people. My fall fun thing is to go to "Renaissance Festivals" which they have in our area in the fall. I know it sounds silly but we dress up in costumes and to to a large site where they have lots of good food and shows. The setting and them is supposed to mimic "old England" around 1550 AD but really anything goes!! At ours there are 15 stages with music, comedy, stories, juggling- you name it. Even a unicorn and mermaids ;-0 It is so much fun and everyone is so happy and cheerful I try to go several times a season. I'll look forward to what she shares...hopefully it gives us all ideas of what helps us get out and around and have fun.

SamBillington

@SamBillington

Hey @itsmewithms The Renaissance Festival sounds awesome!! - love the driving hack too - we are always looking for people to do more Youtube take overs on specific topics - please feel free to give me a shout at [email protected] if you'd like to take over our YouTube channel for a few days... you could do a driving hacks for MSers show..? or anything you like really, we're just trying to build up a library of videos from MSers sharing their experience on different topics so it could br driving, commuting, friend network / going out... give me a shout if you fancy it and we can jump on a call. Enjoy the takeover!! Thanks Sam