Ocrelizumab in PPMS
Hi everyone, I am a new joiner, based in Greater London, excited about this network.
I would like to know if anyone with PPMS has tested Ocrelizumab and how did you become eligible for the drug - has it made any difference in your daily life. Thank you very much for anyone sharing their experiences.
Hi 👋, have PPMS and am on Ocrevus (Ocrelizumab), sorry to say I feel worse than before but my Neuro says my recent MRI shows no or any growth in lesions. Up here north of Hadrian’s wall you have to have active lesions, be under 55 and recommend by your MS team but each health board have their own guidelines,
Your neurologist has to put you forward to the ‘board’ to have it approved and have exhausted other options if your ms is really active on MRIs. There is also stipulations like you have to be able to walk a certain distance unaided etc. I haven’t had it but a friend on mine has and it hit her really hard for a long time. It helped with her ms but she still suffers with the aftermath of the treatment