Hello! I was diagnosed in 2015, although the first onset was in 2013. Still trying to wrap my head around it all after 5 years! Havent had a full blown relapse since April 16 but have the odd numbness etc. How do you finally come to terms with having this illness and not constantly worry about what the future will hold??
Hi Melissa I was diagnosed with SPMS last Oct/Nov, still trying to get my head around it now. I have just learnt to accept it all.... It's not going to be cured or get better anytime soon, I will possibly end up in a wheelchair full time etc, etc, etc. The only thing I'll say about accepting it is.... you just have to accept it, sounds simple I know but really that's all there is to it, along with having the freedom to bitch and moan and whinge as much as you like.
Hello @melissa27. It’s so tough, I know. Fear of the future is so unsettling but I guess for me, having MS has really strengthened my ability to focus on now, today. I don’t know what is around the corner, but I don’t want to ruin it by wasting time being moody and grumpy today, does that make sense? The older you get, more and more people - whatever your age - have health concerns. It’s a fact of life. But I want my own life to focus on quality and making choices that enable that. Let’s not forget, that huge leaps in treatment and research are being made all the time so longer term, there is more hope on the horizon. So, the tough-love side of me says this: suck it up, get on with it! The more compassionate side says: life is for living, whatever that looks like. Make good choices, accept help and support, keep your mind active as much as possible, and treat yourself often. Life will run itself, stressing about it will only serve in making it worse along the way. Take care, sending you hugs x