Does the suffering ever end?
Rock bottom has called me once again and here I am. Mentally I feel done. Physically I feel done. I don’t know what else can help me right now. Suffering from so many more symptoms will of MS. It’s 1 year since my first ever relapse and official diagnosis. I had an MRI over 5 months ago…still no results. My MS nurse is trying to get in touch with my neurologist saying I need to be seen urgently. No response from him. After a lot of digging I found his email address. I sent in an email yesterday all about how much I am struggling and I need to be seen asap. Still nothing. I’ve rang so many different numbers to try get through to him and if it’s not a voicemail telling me I can’t leave a message because the inbox is full it’s me on hold to get through to him for over half an hour to then just be suddenly cut off. I can’t take it anymore. I don’t want to have to take all this anymore.
I’m new to all this MS stuff but I’ve worked in the NHS for a long time and from the clinicians perspective I know that the best way to get a response is to go through PALS. Your hospital should have a PALS team and they should be able to help you get answers from your team quickly. It sucks that you have to go via this route, but it should hopefully get you some answers.
Living with MS will become more manageable. It will. It's scary and frustrating, especially when you are left without support and answers. Definitely contact PALS and stay in touch with your GP and mental health team. I am so very sorry for your struggle. You can request any MRI images and reports directly as can your GP. I wonder fi they've been lost. Seek out any support you're able to and cling to hope for yourself and your little boy.