Has anyone got RRMS as I don’t know much about it newly diagnosed
Hi , I have recently been diagnosed with RRMS in June officially , unofficially May 23 and it scares me to know what the future holds for me.
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Hi@Ewok ,apparently I have it , rrms stands for relapsing (comes and goes ) remitting (your symptoms become bad then subside or dissapear ) there’s no cure (yet ) dmt stands for disease modifying therapy ,the school of thinking is that you should hit your disease hard with a quality dmt (which one is totally up to you ) most people have no idea how ms affects day to day living , physical job roles are ultra difficult to hold down ,mind problems are an issue/symptom of ms (cogfog ../poor short term memory (thankfully these issues have come and gone for me )maybe it’s this quality DmT im on ?? Exercise is mega important and will make you feel better ,to summarise fo lots of research and select the info relevant to your set of circumstances ,& oh more good news rrms can turn into secondary progressive ms …but no one except you knows when or why ?? …ms is the gift that keeps giving …good luck my friend and let us know how you get on
Hi - sorry you’ve joined the club. The definitions have been covered above! Additionally, MS is an incredibly variable condition. Some have it mildly, it ‘burns out’ in some as they get older. Less than half of people are diagnosed with a progressive form (and that was before DMDs). Less than half ‘end in a wheelchair’ which is everybody’s big fear (and that was before DMDs). Not that wheelchairs are that scary if you read this site, they’re a godsend and useful tools for some. Common symptoms in the relapsing remitting form can be fatigue, bladder issues, dizziness, eye problems or sometimes mobility issues. Not everyone gets these. Your attitude is a huge thing - get on the best DMD you’re offered, and then plan to be eating really healthily (lots fruit and veg, minimal processed food), and doing targeted exercise for the rest of your life. Make sure your diabetes is very well controlled. It’s quite overwhelming so take it in stages. I was in the hospital today getting my treatment which I get every six months. For context three other women in the room ranging from twenties to sixties. A range of symptoms among us but all basically well, living our lives and working full or part time if not retired. All walked in from the car park (a fair distance 😝) without difficulty. I hope you’ve lots of support at the moment and take your time, it’s a big diagnosis to get.