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@Becky_Deir-Neilson 

Last reply

Becky_Deir-Neilson

Site newbie

Hey I have wild story about how I found out I have RRMS and quite a rollercoaster ride of trials and tribulations over the past 14 or so years. I'd love to share, been on a couple different MS sites with very little interaction and I'd like to see if this one is different. My goal is to meet new 'friends' and share our stories along with what it's like for each of us to live day to day with this. Talk about meds, what's worked, what hasn't. Talk about family life, etc. I have 4 children between the ages of 22 an 10. 3 of my children have special needs. If you're not bored to death so far, please feel free to contact me so we can chat!!
2
@ItsMewithMS
@ItsMewithMS
 

Sounds pretty common that the first symptom that was identified as MS was optic neuritis as it maybe can't be explained as easily as something else. Before my optic neuritis I now look back and can identify some things going on such as issues lifting my right foot in and out of the car or up the stairs was likely MS a couple of years before I had the ON in my 2nd trimester of pregnancy. No MRI as I was pregnant but when my daughter was 2 I had a relapse which led to an MRI and diagnosis. Then put on Copaxone which seemed to work for many years but I did have some minor relapses quickly shut down by IV prednisone. After 11 years enough lesions were mounting up and I had changed Neuros and he moved me over to Rebif. No new lesions since going on that but I'm having more foot drop in the right foot, gait and balance issues. This could also be attributed to the hip replacement I had 2 years ago. This needs to be better understood. So my life hasn't been significantly impacted by MS but I am now likely slipping into SPMS. This week I will be down at Mayo in Rochester at their Neuro dept. It will be interesting what I learn and if changes are made to my treatment. I've just been aware of this group for a few weeks and have found it very interactive, very active and very supportive. Welcome!