@bennym , if you haven't seen the MS Consultant, who diagnosed you? It's normally the role of the Consultant to make that decision...... Anyway, I would say 2-3 weeks to wait for the MS Nurse. If you haven't heard, locate their phone number and make a polite enquiry. An appointment with a Consultant will take a lot longer. But, it you haven't received an appointment in 2-3 weeks time, then a polite chaser to their secretary would be in order. There should be no need for further tests with the Consultant, as you are already diagnosed. They will probably determine whether you fit the criteria to be treated with Ocrevus, the only treatment available for PPMS. The chat with the MS Nurse will be less formal and is more of a getting to know you introduction.

Not sure what tests you've had to receive your diagnosis. That typically is a MRI to note lesions and some people (I understand) through a spinal tap. All my checks are through brain and spinal MRIs. Annual regular checks and every time I have a new symptom to see if it is active and needs prednisone. The prednisone I am given is through an infusion ball so they just place the IV and then I hook up to it each day to feed in the steriod. Of course placing the IV is like a needle but the nurse does it. The three-time a week shots are with a needle but with an epi-pen type of injector so just pressing the button to inject. While on Rebif they need to check your liver ever 6 months so that is a little blood draw. Didn't really think about it but there is some needle work. They don't bother me. I've donated blood for years and they don't use any big needles like that-