Last reply 3 months ago
Wanting to meet others with MS

Hi all my name’s Maria and i was diagnosed 10 years ago at 20 years old with RRMS and still to this day i haven’t met anyone in person or made any friends online who also have MS.

It would be really nice to make some friends and chat to others with MS especially women around my age who i can relate to.

How have the rest of you managed and where have you started with reaching out to others with MS? I’m hoping joining here will help ๐Ÿ™‚

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marcyg921
3 months ago

Hi and welcome and I’ve sent you a friend request. We’re all a friendly bunch here so it should be easy to make friends especially from this site. Any questions feel free to ask.


dominics
3 months ago

You will find you’ve gone zero to several thousand in one jump.

Welcome aboard.


rmdaniels
3 months ago

@marianotts
Welcome! Iโ€™m Rita. Iโ€™m newly diagnosed just this year with RRMS. Iโ€™ve sent you a friendship request. ๐Ÿ˜Š


shtanto
3 months ago

Hi Maria,

Similar story to yourself. Diagnosed 9 years ago at 25. We’ll certainly answer any questions you may have. Your local MS branch have very probably organised coffee mornings and meetups on meetup.com are another good place to look if you’d also like to chat to people in person. Feel free to PM any of us with queries. Supplement questions, medication questions, lifestyle questions, mental health support, sourcing assistive equipment and telling Dad jokes.

Welcome ๐Ÿ™‚

Eoghan


calliems2002
3 months ago

Hey Maria…perfect place to find fellow MS friends ๐Ÿ˜Š I sent you a friend request..I was diagnosed at 22 which was 17 years ago…yikes I’m getting old ๐Ÿ˜‹


superman
3 months ago

Yeah, it’s like we’re a different breed of people, or as if people know we have MS without even knowing, so they don’t come near us.


marianotts
3 months ago

Thanks all for replying!

Yes there are meet ups in my area,though i never get the chance to attend one as they always fall on the days i work and am always too exhausted to attend the evening meet ๐Ÿ™ Hoping i can make it to one eventually.

In the nicest possible way,friends and family dont quite understand…well my mum understands my struggles more than my partner as hes never seen me relapsing and in a bad way like my mum has. And this causes alot of problems in our relationship in so many ways. I even gave him booklets and leaflets in the past to read afew years ago but clearly all of thats gone out his brain -_-

Just have this massive need to communicate with people who actually understand me and that i can relate to as i feel i dont have anyone to do so with.


rae87
3 months ago

@marianotts I was diagnosed last year just before I turned 32. I live in Birmingham and I’m always looking for ms warriors to talk to.


highlander
3 months ago

@marianotts
You communicate away, as you’ve already noticed, we’re all here to listen, have a rant and a rage.
But keep a sense of humour it really helps.
Keep smiling ๐Ÿ˜ƒ


zulfihan
3 months ago

Hi Maria… I will write to you.inn person . l also want to say that we all are on the same board and somebody was desperately looking for someone to talk and when l contacted the person l was kindly ignored and was unwilling to talk .. is it not any an irony.. may be me..
anyway..
bye now


amber_steele_jack
3 months ago

I love this community! You guys are all so supportive. I am a newly diagnosed mser and would also love to chat with people marianotts. I am 36 now and was diagnosed about a month ago now. I’d love to compare notes and be apart of this awesome community.


flynace67
3 months ago

Hi Maria,

I am new to this community but certainly not to MS. I was diagnosed nearly 18 years ago and, because I live in a small town area, I haven’t met too many others with MS. I joined here for that reason. I, and it looks like everyone else here, would love to chat so post away! There is no better place for information and support than from others who DO walk in the same shoes. ๐Ÿ™‚


grahamjk
3 months ago

Hi @marianotts Iโ€™m 47 diagnosed at 42 so although not over knowledgeable if you want to chat Iโ€™m here but as has been said try looking for your local ms society branch as they should do all kinds of meet ups from coffee mornings to meals so you can meet people who understand exactly what weโ€™re going through and sometimes how to make life acceptable.
Graham xx


vixen
3 months ago

Hello @marianotts, well, Iโ€™m not young and sprightly like most of you, but just wanted to say hello! I hope you fine everything you are looking for here, Iโ€™m sure you will. Have a great weekend ๐Ÿ™‚


strictlysoca
3 months ago

Hi Maria

I donโ€™t know if you will be up for travelling to Sheffield but we have a Shift MS meet up tomorrow Sunday 19th May at the Sheffield Showroom Cinema cafe. Itโ€™s very near the train station. Friends/partners welcome as well. We start at 12.30 and go on til about 3 come and go as you please

We are a variety of ages but some are around your age if that helps. Iโ€™m young at heart ๐Ÿคช

Friend me if you want to private message.


rogersouthall
3 months ago

Maria, http://www.wholesorts.com is my monthly blog and on there is my personal details, if after reading you feel comfortable and would like a chat my details are listed, for now I will send a friend request, we are all a decent bunch, good luck


chezy17
3 months ago

Hey Maria, I was diagnosed properly about 3 years ago but my first attack was about 5 years ago. Best advice I can give to you is talk to people, smile and know it’s OK to have a bad day but get back up stronger the next. Look for the rainbows always and live your life! Like Roger, I’ve been writing a blog, and it helps me gets things off my chest and also hoping to show peeps that having MS is not the end of your life.

Take care.

Cheryl


kazzybee
3 months ago

Hi @marianotts Just finished reading a great book โ€œ stumbling in flatsโ€ by Barbara Stensland who has MS she also writes a blog itโ€™s humorous and honest , lets you know youโ€™re not on your own . Im also new to the site here and new to RRMS aswell, with no one who really understands or wants to so Iโ€™m hoping to find some friends on here . I will send a friend request
Take Care we are not alone Karen ๐Ÿ™‚


marianotts
3 months ago

@chezy17 thanks for the message, i deffo do live life as much as i can, and plans things to look forward to with friends and family.

Having someone to talk to has been the missing thing for me because i did try seek other people to chat to 10 years ago when i was diagnosed but couldnt find anything out there. Life had to go on and ive just had to get on with it,but now ive moved out of my mums home where ive lived for 30 years ive realised i really need someone to talk to who understands me as here now i dont have my mum nor do i have any friends and nobody with ms in the new town i live in!

Deffo glad ive joined on here and hope to chat more and get involved in more convos.

Thanks again to everyones positive replies xx

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