Two year wait?
Saw an MS nurse today. Only the second time I have been and was diagnosed in January. She asked me if I had any questions and I explained that the diagnosis didn’t come as a big shock as I have been steadily struggling slowly over the past 12 months. I was very active and strong before that and little by little I am getting worse. I asked her about any medication I could take and she said I had to meet certain criteria. This criteria is that I log my symptoms over two years and then they can work out which form I have and then decide which medication would be helpful. Am I being dramatic thinking that this is scary as so much has changed for me over 12 months that another two years will mean I am even less capable than I am now?
@jo_buckland Hi there do you live and what type of MS were you diagnosed with. If you're in the states find another Numerologists asap. If you're in the UK change your hospital or call the PALS department in your local hospital..... I'm sure you'll get loads more advice soon, but your location would help us direct you better.
Hi @highlander I’m in Wales, UK. I’ve asked which type of MS I have but they said that it takes a year or so of logging symptoms before they can tell me? I haven’t got a consultant yet as far as I know but as my speech has deteriorated so much over the past few months the nurse said she would refer me to one. I have no idea if I am expecting too much or not enough?!