Last reply 2 months ago
Sick Leave

I have been placed on sick for my mental and physical health. I currently work as a bar supervisor but after this (and being rejected from GMP because of my MS) I am struggling to know what career is best for me 😔 I know this is a very broad question because we are all so different but does anyone have any careers that they find fitting for a person with MS?

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itsmewithms
3 months ago

There are so many symptoms and levels of impact with MS. For me the main issue is mobility and to a lesser degree eyesight. I will have a test later this month to try to measure, or at least establish a baseline, cognitive impairment.

So- it is hard to suggest what will work for you now…or in the future. For me I certainly need a desk job where I am not expected to spend much time on my feet or walking around. I’d prefer not to have to commute long distances or for long times as I feel vulnerable when I am out on bad roads in rural areas that I might have to leave my vehicle to walk for help (I live in a cold rural area where being stranded would be dangerous). I should avoid high stress as that is not good for MS progression. I should also make sure I get good sleep for the same reasons. I need controlled hours or I won’t be able to maintain a good schedule of PT or making necessary appointments). That makes it looks like I can’t really work in a job…but I can. Just has to be the right job…and I am looking for it right now.

I am good at ERP systems and accounting so just interviewed for a job working master data management and maintenance.

Look across your skillset, experience and abilities and there will be something. Just maybe not the thing you’ve done in past but something that can use the skills and experience you bring to the job- 😉


hlyndar89
3 months ago

My job would be quite physically demanding but not so mentally, I’ve had to have some adjustments made so I’m not working in areas with lots of stairs because I struggle with them areas and feel beyond exhausted at the end of the day. My goal is to avoid stress as much as possible, so any job with the least amount of stress is what I’d be going for. If you’re not in a good place mentally that will directly affect your physical health also so maybe just take some time and allow yourself to heal mentally and physically and don’t be hard on yourself for needing to do it. It’s a hard call, because as time passes your needs will change. But I feel personally if you’re happier in your work place with reasonable management it makes all the difference


katherineee
3 months ago

@itsmewithms Thankyou so much for sharing with me, I think I’ll definitely have to look into a lot of jobs to find the one best suited for myself


katherineee
3 months ago

@hlyndar89 thankyou I’m definitely going to take some time to focus on my mental health and maybe look into what jobs would be best suited for myself in that time too


rel12
3 months ago

Hi @katherineee ! 🙂

It sucks trying to continue or search for a job when dealing with MS. It is the constant thought of taking time off for appts, MRI’s, follow ups or even a risk of weird side effects that could happen out of no where when on a treatment. I had to leave my job being that it was a very stressful environment & made me relapse for a week. Every job has its stress but it would be good to find one where there is no high demand in specific tasks or requirements. It really depends on the field or area you are looking into.

Also, try looking for remote or home job!- that is what I have been on the hunt for. Wish you the best!


lukezni
3 months ago

I’m at a sorting office but currently on 3 month sick leave. I’m not sure how I’m going to cope when I go back as it’s coming up to Christmas so lots of work and my cognitive symptoms can only handle so much at once. I’ve been thinking of not going back or at least getting another sick leave period and also focusing on my mental well being but I always feel guilty about not working even tho it shouldn’t be that way 🙃


nutshell88
3 months ago

office jobs are the best even at charities im Saudi used to have an office job in the uk to improve my English skills st citizens advice. and yh i’ve had MS


rogersouthall
3 months ago

Katherineee, Linked In, now what a strange start but seriously there are many opportunities on there of all types of work, not sure how mobile you are what age and your circumstances, but you appear determined so good luck, if you need help just shout


karlsohare
3 months ago

When you find one please send one my way I’m in the nursing profession and it’s a struggle x


lori123
3 months ago

Hi Katherineee!
It is really hard handling MS and work!! I have been out of work now a year because I couldn’t drive home after working 6 hours! I couldn’t do an 8 hour day. It is really hard being home now and we are hard on ourselves when we cannot work. Just find something that you can handle. Yes trying to work from home maybe best.
Just take your time and be patient it will happen. I wish you the best


katherineee
3 months ago

I think I am scared to take on a stay at home job because I’m only 21, I would feel like I’m giving up so soon 🙁 I have actually just been to see my MS nurse today and she has said that she’s going to write a letter to my employer with an action plan explaining my situation and what she and I feel would be best for me (my MS nurse is actually so helpful, I’m very lucky). However if this doesn’t work I feel like I will have to look into less physically demanding jobs. I hope you are all well and thankyou so much for the support x @rel12 @lukezni @nutshell88 @rogersouthall @karlsohare @lori123


nutshell88
3 months ago

nothing can stop you
MS can never stop you unless you let it by giving it the biggest space of your thoughts and worries


rel12
3 months ago

@katherineee Totally understand! I am on the same boat as you. Don’t feel discouraged with MS & trying jobs out. You should see what fits you best, if the job is too demanding and taking a toll on your symptoms then go on to the next. You will find what fits you & stay confident 🙂


drummondbass
2 months ago

Completely get this! I’m 29 and diagnosed 2018 now on ocrevus. My job is mostly physical labour, i can get through but sometimes tiredness kicks in and I’m not overly productive. I can’t afford time off though due to bills etc and sick pay is pretty much a no go now, at least in length and frequency. Would love a job with less physical requirements but tbf its being paid to exercise lol


lisa_morghan
2 months ago

Hi im Lisa for me i was self employed
Working for self you dont have to fit in a other persons ideals maybe i was lucky i
don’t know !!! The health feild there always needing good nurses !!! Take some online coures get certified go work how about a arts this time of year Christmas
Farms trees sales depends on you !!! But you can find something read storys to childern babysit !!! Im now retired so i always have ideas peace to you ✌


doubleo7hud
2 months ago

Can’t help with choosing a job lass but I can tell thee 3 jobs to avoid.

#1 plastic surgeon 😷
Who wants a pair of tits on there chin because you can’t keep bloody hands steady or forgot wtf your doing half way through.

#2 Antique dealer
All the profits will be going tet landfill after you’ve dropped all the fine bone China.

#3 Ninja
Crash, bang, bloody wallop don’t need to say owt else apart from you’ll hear less noise if you sent a giraffe on a unicycle in tet National history museum.

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