Last reply 1 week ago
My story

Hello, I’m new to all this.. mine all started when I was 9 at first they thought it was a tumour but I was admitted to hospital and had loads of medication, got out 4 days later and I was fine.. I was then diagnosed when I was 12 with Multiple Sclerosis, I didn’t have a relapse until a few months back and I am now 19, I only went on medication when I was 16.. I’ve been wanting to speak to people with ms who is similar age to me and found out about this by a doctor.. please feel free to comment your story!!

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lpoollou2
1 week ago

@tatiana_de_la_haye

I wasn’t as young as you but I was 21 when I was diagnosed. I don’t know about you but I found it really hard to deal with someone so life changing at such an early age. I felt like the life I’d always wanted was over. It took me many years to come to terms with it and actually tell people. I am no 33, happily married to my soul mate who loves me for me and doesn’t care about my disability. We have been blessed with two amazing children. MS doesn’t define you which I thought it’s just a part of who you are. Hope you are keeping well xxx

@lpoollou2
I’ve sent you a request so we can message, I found it hard at 12 it didn’t really hit me till I was about 15 in year 10 I started having horrible anxiety attacks and just couldn’t cope being around lots of people so I ended up leaving, I missed all of year 11 of secondary, haven’t been to college or anything cause just come out of my anxiety. My ms causes me a lot of pain, everyday is a struggle since my relapse, I hope you are well xxx


itsmewithms
1 week ago

Almost the entire last issue of the “Momentum” publication of the MS Society focused on people that get MS early in their life. I didn’t realize how many it affected and how it was different. It was a good series of articles and they may be a good source of information for you.
https://www.nationalmssociety.org/What-is-MS/Who-Gets-MS/Pediatric-MS


nutshell88
1 week ago

I wasnt as young as you were when diagnosed I was 17
but symptoms started since early childhood
we weren’t aware why i experienced that


keepsmyelin99
1 week ago

Hi @tatiana_de_la_haye 👋🏻
I’m Sophie (or keepsmyelin99). I’m 20 years old.
I was diagnosed in August after experiencing symptoms from May.
I had optic neuritis, then numbness in my legs, stiff legs, bad walking, dropped foot, uthoff’s phenomenon, l’hermittes sign, reduced sensation in my feet and pins and needles in my fingertips.
I’ve almost fully recovered from my initial attack after having steroids. I’m hoping to start on a treatment very soon.
In the meantime I’ve started back at university, resumed the season at my local community orchestra and been catching up with my friends regularly.

Nice to meet you! 😊 x

@keepsmyelin99
I’ve added you, you can private message me if you like xx

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