Last reply 3 weeks ago
Covid-19 Ocrevus and work

Are there any other people who have very recently had Ocrelizumab or similar and work in the public sector? Given the current situation with Covid 19 are you continuing to do so? I am contemplating what I should do going forward. I work in an infants school and I was banking on schools closing for a while which it appears in the UK to not be something that is set to happen for some time… should I stay calm and carry on or think about self isolating as a family? We have two children aged 4 and 9. Just not quite sure what to do for the best. Any thoughts very welcome. 😊

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lea_jeffreys
3 weeks ago

I have just finished my first year of Mavenclad and I am particularly vulnerable now as blood count will be low for the next 3-7months. I work in social care. My employers have been great. They have taken some of my workload and have stopped people coming to my office. They asked me if I wanted to work from home too.
I no longer go to supermarkets or use public transport.
I think we are all in a risky situation. Have you asked your MS nurse for advice? You must look after yourself. I hope you find the answer 🙂


kellzz
3 weeks ago

How do you like Ocrevus? My doc wants to start me on it soon. I want to wait until this corona visit stuff settles…


lucy41
3 weeks ago

@lea_jeffreys Thank you for your lovely message. I managed to speak with my class teacher this eve (I’m a Teaching assistant and love my job) and she was really supportive of me doing what’s best for my health so I’m thinking perhaps I will take time off. No-one seems to be able to advise me and my neurologist is currently on leave. I’m hoping perhaps next week I’ll be able to get more info. I do wonder if hunkering down right now is the way forward for me. Good luck on Mavenclad it sounds a great med and thank you for taking the time to reply – hugely appreciated. 😊


lucy41
3 weeks ago

@kellzz I started Ocrevus last August and it has been good for me so far. Minimal side effects, more energy and just able to get on with life.


itsmewithms
3 weeks ago

Lots of discussion on this early in the week especially by Dominic. Use the little magnifying glass in the upper left, they are likely under Corona.

I am waiting until mid next week to decide to take my mid-April infusion which would be my first full infusion. Watching how things work out between now and then…at this point we don’t have many cases locally but they are doubling daily which has been typical around the world.

I can pretty well self isolate as I am not working right now but was getting contacted earlier this week about new job opportunities and contracts. When I mentioned Covid19 impacting business the recruiter really just laughed it off…since then it has been declared a pandemic and people are looking at it a bit differently as schools are closing and America’s favorite actor (Tom Hanks) said he and his wife have tested positive while they are in Australia..so when it is someone you know (and everyone in America thinks of him as their good friend) then they take it seriously…

So- keeping a watchful eye on this but follow up on what Dominic said…all about the B-cell and T-cel stuff and he is feeling more confident after understanding that and why they lifted the block about people getting their infusions…


itsmewithms
3 weeks ago

I should have put his name right…don’t want to irritate a scot ;-0 DominicS


dominics
3 weeks ago

@itsmewithms I am not a Sweaty.

How very dare you. @highlsnder and @watsoncraig both are.

I am a humble Britnadian.


dominics
3 weeks ago

@lucy41 watch the video I did with Prof G posted yesterday. It ought to shed some light on things and help reassure you.

I am on Ocrelizumab for the last year and a bit. Best tolerated DMT of the four I have had in 26y of MS.


itsmewithms
3 weeks ago

@dominics ;-0 so sorry to to mix you in with that lot ;-0 I’ve met many Scots and they are a crazy bunch…I had a ski trip with a couple of them in my class in Canada and even if they didn’t know how to ski moguls early in the day that didn’t stop them from hitting black diamonds after putting back a pint over lunch ;-0

And…most of the brits I met weren’t all the humble ;-0 but did toss a pint from time to time as well ;-0 That reminds me to do a linked in connections with one of my favorites…I see he is in London now doing SAP work. When we worked together he was helping at several of our plants and headquarters implementing Oracle. The good old days…never seemed that great when you were in the middle of them ;-0


watsoncraig
3 weeks ago

A more sensitive person could get upset at being called a “sweaty”@dominics but @highlander and myself are not so sensitive so you will now be thought of as “that septic”(septic tank=yank) as I know Canadians hate being thought of as American! I am British and Scottish.
Anyhoo, Ihad my second half dose 4 weeks ago so now wait 5 more months until my first full dose and this plague won’t stop me if permitted.


dominics
3 weeks ago

#itsmewithms See what you’ve done? Everyone North of Hadrian’s Wall is in a froth and is going all Mel Gibson. As for thinking they went bump skiing with the aid of single lunchtime pint, then you have swallowed an unlikely story of abstemiousness.

I was a ski guide at Lake Louise when 18 and two Scottish Paras in blue jeans rocked up. Turns out the fact they had never skiied before. They had, however, bought a ‘few cans’ to drink on the lift up to ‘relax’ them as they were determined to pick up the first run. Nothing sissy like a blue run. The debate was whether to start on a red or get straight onto a black. I was somewhat in awe of the role they expected alcohol to play in the learning process.

@watsoncraig – I suspect the Septics and Canucks on here outnumber the Sweatys 😉

I was called Yank in the Army with exactly the same rationale. It was the Geordies wot done it. They were so unintelligible I had made the mistake of asking them what country they were from. Being a, and I quote, ‘southern nonce’ I was put right with the application of the nickname.


watsoncraig
3 weeks ago

@dominics I hate that Mel Gibson movie although one of my kilts was made by the person who made his for that movie. They can outnumber away, I have always been in a minority


dominics
3 weeks ago

@watsoncraig – wartime mentality now. We’re all in this together. Tartan skirts aside 😉


lucy41
3 weeks ago

Ha! This has been an entertaining read thank you. @itsmewithms thank you for directing me, I had searched Coronavirus and Covid-19 to no avail, Corona was the way forward! I am a newbie. Thank you for your info and your help. @dominics your interview with Prof G precedes you! I follow him on Twitter where he posted it and I in turn shared it on an Ocrevus Fb UK page where I normally purely observe but it felt far too useful not to share! From there someone guided me to shiftms. It is incredibly reassuring and insightful thank you on behalf of the MS community. I am just a worrier at the best of times and this whole Covid 19 malarkey is testing my anxiety levels somewhat.


dominics
3 weeks ago

Pleasure. Glad you found it helpful.


itsmewithms
3 weeks ago

You guys always crack me up ;-0 I hate to cause an incident and see the armada on the horizon…but living safely in the center of this big continent I consider myself pretty safe…it is pretty hard to find and get to Wisconsin in the first place.

It was when we were skiing up at Fernie that my ski instructor was a self professed irresponsible ski bum. He decided to forego college for one year to see if he could become a mogul professional skier…within that year he blew out his knees but couldn’t talk himself into going to college so was a ski instructor. He pretty much egged us into taking the most challenging hill we thought we could do so that over 3 days we really advanced our skills.

In the last run of the last day he took us to a hill he had tried at the beginning of the day that he expected to remain ok for us but due to the snowfall that day and getting pretty carved up by other skiers it had just been regraded as a black diamond. He gave us the option of still trying it (with his guidance) or climbing back out of the launch location (very difficult!) back to the previous hill. The Scots yelped with joy and threw themselves down the hill. I cautiously made my way down an only torqued my knee once, which I felt for days ;-0 glad it was the last day of expected skiing and that ibuprofen and hot tubs got me through it.

The Scots toasted me as I limped through the chalet after I turned in my skis 😉 another good ski vacation…I survived ;-0

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