We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

©2024 Shift.ms

@Paddymanc 

Last reply

Paddymanc

Back To Square One Again ?

hi everyone not posted for a while, been keeping my head down, and just getting on with it in my previous posts, I've explained what led me to my stage well just 6 months after my discharge from hospital I have managed to see my consultant at last, without looking at my scans and just briefly at my notes and then a few tests with the fork, and finger to hand contact asked me a lot of questions he said he didnt think i have MS, so he has decided to start me from scratch again so he has ordered full MRI, cat scan, pet scan, another lumbar puncture full set of blood, during this meeting he kept mentioning cancer ? that has never been mentioned before, and kind of knocked me for 6 he totally dismissed me when I asked him with help for my pain, any help with neuro physio he then told me to make an appt for 4 months sorry about the rant, but i do believe im back to square one again regards paddy
6
@Stumbler
@Stumbler
 

@paddymanc , I'm at a bit of a loss for words, it seems that you have been in a state of suspended animation for the last year. You have seemingly been given a diagnosis of MS back last year. I'm just wondering whether that initial diagnosis was just given as a possibility. A diagnosis of MS has to fulfil the McDonald Criteria (https://www.mstrust.org.uk/a-z/mcdonald-criteria), which is questionable in an A & E scenario. But this belies the assignment of an MS Nurse. That's the only justification I can see for your Consultant's present attitude. There just seems to be too many questions about questionable attitudes.......

@ItsMewithMS
@ItsMewithMS
 

Wow...once I was in the hands of a competent Neurologist at the U of M (Minnesota/US) there was at least no question of whether or not I had MS. The Lesions in my MRI were definitive. Any chance you should or could check a place with Drs with a strong history with MS? There is actually a condition that is very rare where there are lesions on the spine...and I did pick up one of these once and then they did a blood test to rule that out. Glad they said I didn't have that as it is worse then MS with no known treatment...say what? worse? no thanks Not sure where you are at but I am hoping you can find good/better care that you feel confident in.