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@alibev 

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alibev

About me

Hello! I was diagnosed with RRMS in 2011. At that point that’s when the world stopped. I didn’t even cry I just sat there for hours just taking it in. I’ve been on every medication known to man and as I got older it started to progress. I was on Tysabri for a long while! Now I’m on Ocravus PPMS is h...

@NickEady 

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NickEady

Balance

I can take a few steps with a zimmer frame, or while furniture surfing, the minute I stop moving, I loose my balance and fall over, I learnt to parachute roll when falling if I get chance, avoids major injuries, broke my arm twice, anyone else have balance issues?
Wales, UK

@smallfoot 

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smallfoot

@nicholas97 

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nicholas97

Energy

Any recommendations to help with energy levels? Other than the pharmaceutical meds. I try to exercise as much as physically possible but most of know how much that is when your not that mobile, I try to set in the sunshine and of course drink an occasional up of coffee but I am truly dragging all th...

@Jerone 

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Jerone

Neurogenic bladder

Does anyone else suffer with a neurogenic bladder? How do you cope? I literally always feel like I have to go and it intensifies with standing. The last bladder scan I took read %0 urine yet I still have an intense urge. If anyone has experience this please share what helped you?

@JFrazier57 

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JFrazier57

Support question:

Does anyone else’s spouse allow their chidren to belittle you about your condition(s), then tell YOU that they “can’t handle it” when you ask them to back you up against your kid? Asking for a friend.

@JFrazier57 

JFrazier57

Brain buzzes

Hey yall, does anyone else deal with what I call “brain buzzes”?

@edennova 

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edennova

Lesions?

So I'm about to get tested for MS, I found out it does in fact run in the family. To have Ms do you have to have lesions on your brain or is that not a qualifying thing that you have to have? I'm scared because I don't want this but eventually I know I'm going to need a wheelchair and it's making me...

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